doi: 10.1111/j.1748-720X.2011.00577.x.
The Michigan BioTrust for Health: using dried bloodspots for research to benefit the community while respecting the individual
Affiliations
- PMID: 21309908
- DOI: 10.1111/j.1748-720X.2011.00577.x
Item in Clipboard
The Michigan BioTrust for Health: using dried bloodspots for research to benefit the community while respecting the individual
J Law Med Ethics.
2011 Mar.
Free article
No abstract available
Similar articles
-
From newborn screening to population health research: implementation of the Michigan BioTrust for health.Public Health Rep. 2013 Sep-Oct;128(5):377-84. doi: 10.1177/003335491312800508. Public Health Rep. 2013. PMID: 23997284 Free PMC article.
-
Newborn blood collections. Science gold mine, ethical minefield.Science. 2009 Apr 10;324(5924):166-8. doi: 10.1126/science.324.5924.166. Science. 2009. PMID: 19359558 No abstract available.
-
Parental Consent for the Use of Residual Newborn Screening Bloodspots: Respecting Individual Liberty vs Ensuring Public Health.JAMA. 2015 Jul 7;314(1):21-2. doi: 10.1001/jama.2015.6175. JAMA. 2015. PMID: 26053685 No abstract available.
-
Retention and research use of residual newborn screening bloodspots.Pediatrics. 2013 Jan;131(1):120-7. doi: 10.1542/peds.2012-0852. Epub 2012 Dec 3. Pediatrics. 2013. PMID: 23209103 Free PMC article. Review.
-
Ethical aspects of the expansion of neonatal screening programme due to technological advances.Clin Chem Lab Med. 2012 Jun;50(6):999-1002. doi: 10.1515/CCLM.2011.761. Clin Chem Lab Med. 2012. PMID: 22035141 Review.
Cited by
-
Lessons that newborn screening in the USA can teach us about biobanking and large-scale genetic studies.Per Med. 2013 Jan 1;10(1):81-87. doi: 10.2217/pme.12.115. Per Med. 2013. PMID: 23599719 Free PMC article.
-
Effect of deliberation on the public's attitudes toward consent policies for biobank research.Eur J Hum Genet. 2018 Feb;26(2):176-185. doi: 10.1038/s41431-017-0063-5. Epub 2018 Jan 18. Eur J Hum Genet. 2018. PMID: 29348694 Free PMC article.
-
What can data trusts for health research learn from participatory governance in biobanks?J Med Ethics. 2022 May;48(5):323-328. doi: 10.1136/medethics-2020-107020. Epub 2021 Mar 19. J Med Ethics. 2022. PMID: 33741681 Free PMC article.
-
Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities.J Community Genet. 2015 Apr;6(2):117-28. doi: 10.1007/s12687-014-0206-0. Epub 2014 Dec 23. J Community Genet. 2015. PMID: 25533753 Free PMC article.
-
From newborn screening to population health research: implementation of the Michigan BioTrust for health.Public Health Rep. 2013 Sep-Oct;128(5):377-84. doi: 10.1177/003335491312800508. Public Health Rep. 2013. PMID: 23997284 Free PMC article.
MeSH terms
LinkOut - more resources
Full Text Sources
Medical
