Ethics in health care services for young persons with neurodevelopmental disabilities: a focus on cerebral palsy
- PMID: 21551372
- DOI: 10.1177/0883073811402074
Ethics in health care services for young persons with neurodevelopmental disabilities: a focus on cerebral palsy
Abstract
In this article we review and discuss some of the key ethical and social challenges that young persons with cerebral palsy face in health care delivery. We identify and explain these challenges, some of which are rarely discussed in contemporary medicine and biomedical ethics, partly because they are not considered genuine "ethical" challenges per se. Most of these challenges are heavily shaped by broader social context and institutional practices, which highlights the importance of nonbiological aspects of the care of young persons with cerebral palsy from an ethics standpoint.
Similar articles
-
Perspectives of adolescents and young adults with cerebral palsy on the ethical and social challenges encountered in healthcare services.Narrat Inq Bioeth. 2011 Spring;1(1):43-54. doi: 10.1353/nib.2011.0001. Narrat Inq Bioeth. 2011. PMID: 24406529
-
Pediatric patients with cerebral palsy or other developmental disabilities.Semin Pediatr Neurol. 2011 Jun;18(2):72-3. doi: 10.1016/j.spen.2011.05.016. Semin Pediatr Neurol. 2011. PMID: 22036482 No abstract available.
-
The Worster-Drought syndrome: a severe test of paediatric neurodisability services?Dev Med Child Neurol. 1997 Nov;39(11):782-4. Dev Med Child Neurol. 1997. PMID: 9393896 Review. No abstract available.
-
[Gastrointestinal disorders in children with cerebral palsy and neurodevelopmental disabilities].An Pediatr (Barc). 2010 Dec;73(6):361.e1-6. doi: 10.1016/j.anpedi.2010.03.003. Epub 2010 Sep 16. An Pediatr (Barc). 2010. PMID: 20817582 Spanish.
-
Ethics in neurodevelopmental disability.Handb Clin Neurol. 2013;118:243-63. doi: 10.1016/B978-0-444-53501-6.00021-4. Handb Clin Neurol. 2013. PMID: 24182383 Review.
Cited by
-
New Ethical Issues in Cerebral Palsy.Front Neurol. 2021 Mar 19;12:650653. doi: 10.3389/fneur.2021.650653. eCollection 2021. Front Neurol. 2021. PMID: 33815261 Free PMC article. Review.
-
Protection of Privacy of Information Rights among Young Adults with Developmental Disabilities.Int J Ment Health Addict. 2018;16(3):545-572. doi: 10.1007/s11469-018-9904-x. Epub 2018 Apr 18. Int J Ment Health Addict. 2018. PMID: 29904325 Free PMC article.
-
Studying the Research-Practice Gap in Physical Therapies for Cerebral Palsy: Preliminary Outcomes Based on a Survey of Spanish Clinicians.Int J Environ Res Public Health. 2022 Nov 5;19(21):14535. doi: 10.3390/ijerph192114535. Int J Environ Res Public Health. 2022. PMID: 36361414 Free PMC article.
-
Ethics challenges of transition from paediatric to adult health care services for young adults with neurodevelopmental disabilities.Paediatr Child Health. 2014 Feb;19(2):65-8. doi: 10.1093/pch/19.2.65. Paediatr Child Health. 2014. PMID: 24596475 Free PMC article. No abstract available.
-
Displaying Moral Courage in Providing Discretionary Treatment in a Technologically Advanced, yet Resource-Limited Setting.Asian Bioeth Rev. 2025 Feb 28;17(2):331-341. doi: 10.1007/s41649-024-00338-w. eCollection 2025 Apr. Asian Bioeth Rev. 2025. PMID: 40225796
Publication types
MeSH terms
LinkOut - more resources
Full Text Sources
Medical