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. 2011 Summer;5(2):143-50.
doi: 10.1353/cpr.2011.0022.

Collaboration strategies in nontraditional community-based participatory research partnerships: lessons from an academic−community partnership with autistic self-advocates

Christina Nicolaidis  1 , Dora Raymaker, Katherine McDonald, Sebastian Dern, Elesia Ashkenazy, Cody Boisclair, Scott Robertson, Amanda Baggs
Affiliations

Collaboration strategies in nontraditional community-based participatory research partnerships: lessons from an academic−community partnership with autistic self-advocates

Christina Nicolaidis et al. Prog Community Health Partnersh. 2011 Summer.

Abstract

Background: Most community-based participatory research (CBPR) projects involve local communities defined by race, ethnicity, geography, or occupation. Autistic self-advocates, a geographically dispersed community defined by disability, experience issues in research similar to those expressed by more traditional minorities.

Objectives: We sought to build an academic-community partnership that uses CBPR to improve the lives of people on the autistic spectrum.

Methods: The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) includes representatives from academic, self-advocate, family, and professional communities. We are currently conducting several studies about the health care experiences and well-being of autistic adults.

Lessons learned: We have learned a number of strategies that integrate technology and process to successfully equalize power and accommodate diverse communication and collaboration needs.

Conclusions: CBPR can be conducted successfully with autistic self-advocates. Our strategies may be useful to other CBPR partnerships, especially ones that cannot meet in person or that include people with diverse communication needs.

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Figures

Figure 1
Figure 1
AASPIRE’s Infrastructure
Figure 2
Figure 2
The CBPR Process
Figure 3
Figure 3
The Five-Finger Discussion/Decision Method
See this image and copyright information in PMC

References

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