A qualitative investigation into the maternal experience of having a young child with severe food allergy

Abstract

Background: Severe food allergy has potentially life threatening consequences. Despite the significant impact on quality of life for families affected by food allergy, there is still relatively little known about the psychosocial experience in this area, especially with regards to the parenting experience.

Objectives: This study focused on the following areas of parental experience: (1) having a young child with severe food allergy; (2) perception of the effect of food allergy on family relationships; (3) managing the challenges associated with severe food allergy.

Methods: Eight mothers of children with severe food allergy completed semi-structured interviews. Interview transcripts were analysed using Interpretative Phenomenological Analysis (IPA), a qualitative methodology.

Results: Three superordinate themes emerged from the analysis: (1) Parental adjustment-re-establishing an "even keel"; (2) It's a big responsibility: Living with risk; (3) Identity and the social aspects of allergy. This article focuses on the most psychologically salient findings within each of these superordinate themes.

Conclusion: Mothers in this study shared similar concerns to mothers of children with other chronic illnesses. It is recommended that the experience of allergy should be viewed in the wider family context with specific consideration given to parental coping and anxiety. Services could better meet the psychological and social needs of those affected by allergy.