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. 2012 May;54(5):657-63.
doi: 10.1097/MPG.0b013e3182407c4f.

Health-related quality of life in pediatric patients with long-standing pancreatitis

John F Pohl  1 , Christine A Limbers, Marie Kay, Annette Harman, Michael Rollins, James W Varni
Affiliations

Health-related quality of life in pediatric patients with long-standing pancreatitis

John F Pohl et al. J Pediatr Gastroenterol Nutr. 2012 May.

Abstract

Objectives: There are limited data on health-related quality of life (HRQOL) in pediatric patients with long-standing pancreatitis (including acute relapsing and chronic pancreatitis) using age-appropriate measurement instruments.

Methods: We evaluated HRQOL in children with long-standing pancreatitis using the PedsQL 4.0 Generic Core Scales by patient self-report as well as parent proxy report. Additionally, patient self-reports and parent proxy reports were completed for the PedsQL Multidimensional Fatigue Scale.

Results: Across all of the dimensions, significantly impaired HRQOL and higher fatigue were noted for both pediatric patient self-report and parent proxy report in comparison with the matched healthy children samples. Higher fatigue was associated with lower HRQOL. There was moderate to good agreement between patient self-reports and parent proxy reports.

Conclusions: Given the impaired HRQOL and fatigue documented in the present study, future studies are needed to determine whether specific factors can modify HRQOL and fatigue in this patient population.

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