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. 2012 Jun;6(2):163-71.
doi: 10.1007/s11764-011-0207-5. Epub 2011 Nov 29.

Family doctor-driven follow-up for adult childhood cancer survivors supported by a web-based survivor care plan

R Blaauwbroek  1 , H A Barf, K H Groenier, L C Kremer, K van der Meer, W J E Tissing, A Postma
Affiliations

Family doctor-driven follow-up for adult childhood cancer survivors supported by a web-based survivor care plan

R Blaauwbroek et al. J Cancer Surviv. 2012 Jun.

Abstract

Purpose: To facilitate family doctor-driven follow-up for adult childhood cancer survivors, we developed a survivor care plan (SCP) for adult survivors and their family doctors.

Methods: The SCP was accessible for survivors and their family doctors on a secure website and as a printed booklet. It included data on diagnosis, treatment and potential risks as well as recommendations for follow-up. Childhood cancer survivors who were off-treatment ≥5 years, aged ≥18 years and not involved in a long-term follow-up program were eligible. They were advised to visit their family doctor. The endpoints were numbers of participants, adherence of family doctors to the guidelines and satisfaction ratings.

Results: The eligibility criteria were fulfilled by 108 survivors. Three family doctors and 15 survivors refused, 10 survivors were non-responders. Of the remaining 80 survivors, 73 survivors visited 72 family doctors. Sixty-nine (96%) family doctors returned data of whom 60 (83%) fully adhered to the recommended tests. The majority of survivors and family doctors were satisfied about the SCP.

Conclusions: A (web-based) SCP for survivors and family doctors can serve as an effective communication vehicle to provide adequate shared care by the long-term follow-up clinic and family doctors.

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Figures

Fig. 1
Fig. 1
Example of two pages of the website
Fig. 2
Fig. 2
Study profile
See this image and copyright information in PMC

References

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