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. 2012 Jun;37(5):523-32.
doi: 10.1093/jpepsy/jsr118. Epub 2012 Jan 23.

Preliminary evaluation of maternal caregiver stress in pediatric eosinophilic gastrointestinal disorders

Tiffany H Taft  1 , Sarah Ballou, Laurie Keefer
Affiliations

Preliminary evaluation of maternal caregiver stress in pediatric eosinophilic gastrointestinal disorders

Tiffany H Taft et al. J Pediatr Psychol. 2012 Jun.

Abstract

Objective: To characterize caregiver stress (CS) in parents of children with Eosinophilic Gastrointestinal Disorders (EGIDs) and understand relationships with psychological functioning and child behavior.

Methods: Caregivers with a child (0-17 years) with EGID completed questionnaires for demographics, EGID severity, treatments, CS, psychological distress, self-efficacy, and child behaviors.

Results: A total of 163 caregivers (98% mother, 94% Caucasian) participated. CS correlated with psychological distress, income, child behavioral problems, treatments, and disease severity. Children were rated higher than age-specific norms for emotional difficulties. Behavioral difficulties associated with gender, age, EGID severity, and duration. Parent psychological distress was most strongly associated with CS. Parental self-efficacy, dietary treatments, and child emotional difficulties were also related to stress.

Conclusions: Mothers reported stress and psychological distress from caring for a child with EGID. The relationship between these variables suggests these parents may benefit from supportive psychotherapy interventions. Evaluation of parental self-efficacy and child behavior is also warranted.

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