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. 2012 Sep;37(8):832-42.
doi: 10.1093/jpepsy/jss059. Epub 2012 May 7.

Evaluating the protective role of racial identity in children with sickle cell disease

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Evaluating the protective role of racial identity in children with sickle cell disease

Crystal S Lim et al. J Pediatr Psychol. 2012 Sep.

Abstract

Objective: This study examined whether racial identity moderates the relation between pain and quality of life (QOL) in children with sickle cell disease (SCD).

Methods: 100 children 8-18 years of age with SCD participated during a regularly scheduled medical visit. Children completed questionnaires assessing pain, QOL, and regard racial identity, which evaluates racial judgments.

Results: Analyses revealed that regard racial identity trended toward significance in moderating the pain and physical QOL relation, (β = -0.159, t(93) = -1.821, p = 0.07), where children with low pain and high regard reported greater physical QOL than children with low pain and low regard. Regard racial identity did not moderate the relation between pain and other QOL dimensions. Pain significantly predicted all dimensions of QOL and regard racial identity significantly predicted social QOL.

Conclusions: Racial identity may be important to consider in future research examining QOL in children with SCD.

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Figures

Figure 1.
Figure 1.
Post-hoc probing of interaction between overall pain and regard racial identity on PedsQL physical score. PedsQL physical as a function of overall pain and regard 1 SD above and 1 SD below the mean in children with SCD.

References

    1. Aiken L S, West S G. Multiple regression: Testing and interpreting interactions. Thousand Oaks, CA: Sage Publications; 1991.
    1. Anie K A, Steptoe A, Bevan D H. Sickle cell disease: Pain, coping and quality of life in a study of adults in the UK. British Journal of Health Psychology. 2002;7:331–344. - PubMed
    1. Ballas, S. K. (1998). Sickle cell pain: Progress in pain research and management. Vol. 11 Seattle, WA IASP Press.
    1. Barakat L P, Lash L A, Lutz M J, Nicolaou D C. Psychosocial adaptation of children and adolescents with sickle cell disease. In: Brown R T, editor. Comprehensive handbook of childhood cancer and sickle cell disease: A biopsychosocial approach. New York: Oxford University Press; 2006. pp. 471–495.
    1. Barakat L P, Patterson C A, Daniel L C, Dampier C. Quality of life among adolescents with sickle cell disease: Mediation of pain by internalizing symptoms and parenting stress. Health and Quality of Life Outcomes. 2008;6:60–68. - PMC - PubMed

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