Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2012 Aug;44(1):73-84.
doi: 10.1007/s12160-012-9371-8.

Group-based trajectory modeling of caregiver psychological distress over time

Affiliations

Group-based trajectory modeling of caregiver psychological distress over time

Chien-Wen J Choi et al. Ann Behav Med. 2012 Aug.

Abstract

Background: Competing theories of adaptation and wear-and-tear describe psychological distress patterns among family caregivers.

Purpose: This study seeks to characterize psychological distress patterns in family caregivers and identify predictors.

Methods: One hundred three caregivers of care recipients with primary malignant brain tumors were interviewed within 1, 4, 8, and 12 months post-diagnosis regarding psychological distress; care recipients were interviewed regarding clinical/functional characteristics. Group-based trajectory modeling identified longitudinal distress patterns, and weighted logistic/multinomial regression models identified predictors of distress trajectories.

Results: Group-based trajectory modeling identified high-decreasing (51.1 % of caregivers) and consistently low (48.9 %) depressive symptom trajectories, high-decreasing (75.5 %) and low-decreasing (24.5 %) anxiety trajectories, and high (37.5 %), moderate (40.9 %), and low-decreasing (21.6 %) caregiver burden trajectories. High depressive symptoms were associated with high trajectories for both anxiety and burden, lower caregivers age, income, and social support, and lower care recipient functioning.

Conclusions: Our data support the adaptation hypothesis; interventions should target those at risk for persistent distress.

PubMed Disclaimer

Conflict of interest statement

Conflict of Interest Statement The authors have no conflict of interest to disclose.

Figures

Fig. 1
Fig. 1
Flow diagram of study design
Fig. 2
Fig. 2
Predicted (a) depressive symptoms, (b) anxiety, and (c) schedule burden scores for each caregiver over time, based on random effects models. Each population average (thick line) decreases over time
Fig. 3
Fig. 3
Trajectory plots of depressive symptoms from diagnosis to 1 year. Dots and diamonds denote the individual scores. For each trajectory group, the solid line represents the predicted trajectory and the dashed lines represent the 95 % confidence interval
Fig. 4
Fig. 4
Trajectory plots of anxiety from diagnosis to 1 year. Dots and diamonds denote the individual scores. For each trajectory group, the solid line represents the predicted trajectory and the dashed lines represent the 95 % confidence interval
Fig. 5
Fig. 5
Trajectory plots of schedule burden scores from diagnosis to 1 year. Dots and diamonds denote the individual scores. For each trajectory group, the solid line represents the predicted trajectory and the dashed lines represent the 95 % confidence interval

References

    1. The National Alliance for Caregiving. AARP: Caregiving in the US. Washington, DC: NAC and AARP; 2005.
    1. Pinquart M, Sorensen S. Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: A meta-analysis. J Gerontol B Psychol Sci Soc Sci. 2003;58:112–128. - PubMed
    1. Carter PA. Caregivers’ descriptions of sleep changes and depressive symptoms. Oncol Nurs Forum. 2002;29:1277–1283. - PubMed
    1. Picot SJ, Genet CA. Behavior upset in hypertensive and normotensive black female caregivers. Clin Excell Nurse Pract. 1998;2:23–29. - PubMed
    1. Schulz R, Beach SR. Negative and positive health effects of caring for a disabled spouse: Longitudinal findings from the caregiver health effects study. Psychology & Aging. 2000;15:607–616. - PubMed

Publication types