Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2011 Nov;63 Suppl 11(0 11):S438-45.
doi: 10.1002/acr.20560.

Measures of health status and quality of life in juvenile rheumatoid arthritis: Pediatric Quality of Life Inventory (PedsQL) Rheumatology Module 3.0, Juvenile Arthritis Quality of Life Questionnaire (JAQQ), Paediatric Rheumatology Quality of Life Scale (PRQL), and Childhood Arthritis Health Profile (CAHP)

A C Carle  1 , E Morgan Dewitt, M Seid
Affiliations
Review

Measures of health status and quality of life in juvenile rheumatoid arthritis: Pediatric Quality of Life Inventory (PedsQL) Rheumatology Module 3.0, Juvenile Arthritis Quality of Life Questionnaire (JAQQ), Paediatric Rheumatology Quality of Life Scale (PRQL), and Childhood Arthritis Health Profile (CAHP)

A C Carle et al. Arthritis Care Res (Hoboken). 2011 Nov.

Abstract

Pediatric researchers and clinicians increasingly recognize the importance of measuring the impact of childhood disease across many aspects of a child’s life. In this review, we describe four measures of health related quality of life (HRQOL) designed specifically for children with Juvenile Idiopathic Arthritis (JIA). HRQOL generally refers to how an individual feels about aspects of their life in relation to their health. The World Health Organization originally described HRQOL as minimally including: physical, mental, and social health dimensions. Subsequent HRQOL definitions, while varied, have incorporated the notion that individuals have an important and distinct viewpoint regarding their disease and the quality of their life. They have also often emphasized HRQOL’s subjective nature. These features present unique challenges when measuring HRQOL in children. Cognizant of these issues, we review the development and psychometric properties of the Pediatric Quality of Life Inventory (PedsQL) Rheumatology Module 3.0, the Juvenile Arthritis Quality of Life Questionnaire (JAQQ), the Paediatric Rheumatology Quality of Life Scale (PRQL), and the Childhood Arthritis Health Profile (CAHP).

PubMed Disclaimer

References

    1. Organization WH. Constitution of the World Health Organization basic document. 1948.
    1. Eiser C, Morse R. A review of measures of quality of life for children with chronic illness. Archives of disease in childhood. 2001;84(3):205. - PMC - PubMed
    1. Eiser C, Kopel S. Perceptions of health and illness: Current research and applications. 1997. Children’s perceptions of health and illness; pp. 47–76.
    1. Seid M, Opipari L, Huang B, Brunner H, Lovell D. Disease control and health related quality of life in juvenile idiopathic arthritis. Arthritis Care & Research. 2009;61(3):393–399. - PMC - PubMed
    1. Varni J, Katz E, Colegrove R, Jr, Dolgin M. Adjustment of children with newly diagnosed cancer: Cross-informant variance. Journal of Psychosocial Oncology. 1995;13(4):23–38.

Publication types