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Review
. 2011 Nov;63 Suppl 11(Suppl 11):S486-90.
doi: 10.1002/acr.20581.

The future of measuring patient-reported outcomes in rheumatology: Patient-Reported Outcomes Measurement Information System (PROMIS)

Dinesh Khanna  1 , Eswar Krishnan, Esi Morgan Dewitt, Puja P Khanna, Brennan Spiegel, Ron D Hays
Affiliations
Review

The future of measuring patient-reported outcomes in rheumatology: Patient-Reported Outcomes Measurement Information System (PROMIS)

Dinesh Khanna et al. Arthritis Care Res (Hoboken). 2011 Nov.
No abstract available

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Figures

Figure 1
Figure 1. PROMIS Domain hierarchy
Figure 2
Figure 2
Comparison of information content of 6 physical function instruments: HAQ-DI, PROMIS HAQ, PROMIS 10-item short form, PROMIS 20-item short form, PF-10 (from SF-36), and 10-item PROMIS CAT. Instruments with greater information content have standard error curves that are lower and have a greater SD range at a reliability > 0.95. More items are better than fewer, IRT-based (PROMIS) is better than non-IRT-based items and CAT is better than static. Taken from PMID 19738214
Figure 3
Figure 3
Computer generated PROMIS report of a 50-year old male with recently diagnosed systemic sclerosis. The report provides the patient's score for depression and physical function scales and compares it to the US general population.
Figure 4
Figure 4
Computer generated PROMIS graph of a 50-year old male with recently diagnosed systemic sclerosis. The report depicts patient's score for depression and physical function scales and compares it to the US general population.
See this image and copyright information in PMC

References

    1. Cella D, Yount S, Rothrock N, Gershon R, Cook K, Reeve B, et al. The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Med Care. 2007;45(5 Suppl 1):S3–S11. - PMC - PubMed
    1. Reeve BB, Hays RD, Bjorner JB, Cook KF, Crane PK, Teresi JA, et al. Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS) Med Care. 2007;45(5 Suppl 1):S22–S31. - PubMed
    1. Hays RD, Liu H, Spritzer K, Cella D. Item response theory analyses of physical functioning items in the medical outcomes study. Med Care. 2007;45(5 Suppl 1):S32–S38. - PubMed
    1. Fries JF, Spitz P, Kraines RG, Holman HR. Measurement of patient outcome in arthritis. Arthritis Rheum. 1980;23(2):137–145. - PubMed
    1. Khanna D, Hays RD, Maranian P, Seibold JR, Impens A, Mayes MD, et al. Reliability and validity of the University of California, Los Angeles Scleroderma Clinical Trial Consortium Gastrointestinal Tract Instrument. Arthritis Rheum. 2009;61(9):1257–1263. - PMC - PubMed

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