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. 2012 Jul;22(7):997-1006.
doi: 10.1177/1049732312443427.

African American and non-African American patients' and families' decision making about renal replacement therapies

Johanna Sheu  1 , Patti L Ephraim, Neil R Powe, Hamid Rabb, Mikiko Senga, Kira E Evans, Bernard G Jaar, Deidra C Crews, Raquel C Greer, L Ebony Boulware
Affiliations

African American and non-African American patients' and families' decision making about renal replacement therapies

Johanna Sheu et al. Qual Health Res. 2012 Jul.

Abstract

We conducted focus group meetings of African American and non-African American patients with end-stage renal disease (six groups) and their family members (six groups), stratified by race/ethnicity and treatment. We elicited differences in participants' experiences with shared decision making about initiating renal replacement therapy (RRT; that is, hemodialysis, peritoneal dialysis, or a kidney transplant). Patients were often very sick when initiating RRT, and had little, if any, time to make a decision about what type of RRT to initiate. They also lacked sufficient information about alternative treatment options prior to initiation. Family members played supportive roles and shared in decision making when possible. Reports were similar for African American and non-African American participants. Our findings suggest that a greater emphasis on the improved engagement of patients and their families in shared decision making about RRT initiation is needed for both ethnic/racial minorities and nonminorities.

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References

    1. Alexander GC, Sehgal AR. Barriers to cadaveric renal transplantation among Blacks, women, and the poor. Journal of the American Medical Association. 1998;280(13):1148–1152. doi:10.1001/jama.280.13.1148. - PubMed
    1. Ayanian JZ, Cleary PD, Weissman JS, Epstein AM. The effect of patients’ preferences on racial differences in access to renal transplantation. New England Journal of Medicine. 1999;341(22):1661–1669. doi:10.1056/NEJM199911253412206. - PubMed
    1. Binik YM, Devins GM, Barre PE, Guttmann RD, Hollomby DJ, Mandin H, Burgess ED. Live and learn: Patient education delays the need to initiate renal replacement therapy in end-stage renal disease. Journal of Nervous and Mental Disease. 1993;181(6):371–376. doi:10.1111/j.1600-6143.2009.02620.x. - PubMed
    1. Boulware LE, Meoni LA, Fink NE, Parekh RS, Kao WH, Klag MJ, Powe NR. Preferences, knowledge, communication and patient-physician discussion of living kidney transplantation in African American families. American Journal of Transplantation. 2005;5(6):1503–1512. doi:10.1111/j.1600-6143.2005.00860.x. - PubMed
    1. Boulware LE, Troll MU, Jaar BG, Myers DI, Powe NR. Identification and referral of patients with progressive CKD: A national study. American Journal of Kidney Diseases. 2006;48(2):192–204. doi:10.1053/j.ajkd.2006.04.073. - PubMed

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