Recruitment and retention of ethnic minority elders into clinical research

Abstract

Despite an increasing awareness of the problem, clinical research continues to include lesser numbers of ethnic minority participants disproportionate to their population percentages. To rectify this problem, this article attempts to identify key barriers to minority recruitment and retention as well as specific strategies and methods successful in the past. We propose specific recommendations to address these barriers, and formulate a 3-prong approach to increasing minority recruitment and retention, with emphasis on elderly participants. The article discusses such concerns as building trust in the target community, using appropriate methods of outreach, and providing culturally sensitive written materials at appropriate health literacy levels. Through an awareness of and attention to cultural differences and sensitivities, researchers can and must address the chronic underrepresentation of ethnic minorities in clinical research.