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. 2012;8(7):e1002549.
doi: 10.1371/journal.pcbi.1002549. Epub 2012 Jul 12.

Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)

Yann Joly  1 , Edward S Dove, Bartha M Knoppers, Martin Bobrow, Don Chalmers
Affiliations

Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)

Yann Joly et al. PLoS Comput Biol. 2012.
No abstract available

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Conflict of interest statement

I have read the journal's policy and have the following conflicts: YJ is the Data Access Officer responsible for ICGC DACO. ESD is a member of DACO. YJ, BMK (Chair of EPC), MB, and DC (Chair of IDAC) are members of ICGC IDAC.

Figures

Figure 1
Figure 1. ICGC-DACO tiered access process and storage of controlled ICGC data.
The Ontario Institute for Cancer Research (OICR) in Toronto is the host of the ICGC Data Coordination Center (DCC). All ICGC controlled access data is hosted at DCC with the exception of the raw sequence reads (BAM files), which are currently hosted at the European Bioinformatics Institute's (EBI) European Genome-phenome Archive (EGA). Access to these files is coordinated with DCC once DACO approval is granted.
See this image and copyright information in PMC

References

    1. Birney E, Hudson TJ, Green ED, Gunter C, et al. Toronto International Data Release Workshop Authors. Prepublication data sharing. Nature. 2009;461:168–170. - PMC - PubMed
    1. Walport M, Brest P. Sharing research data to improve public health. Lancet. 2011;377:537–539. - PubMed
    1. The Wellcome Trust. Sharing data from large-scale biological research projects: A system of tripartite responsibility. 2003. Report of a meeting organized by the Wellcome Trust and held on 14–15 January 2003 at Fort Lauderdale, USA. Available: http://www.genome.gov/pages/research/wellcomereport0303.pdf. Accessed 3 May 2012.
    1. The White House Office of the Press Secretary. Joint statement by President Clinton and Prime Minister Tony Blair of the U.K. 2000. Available: http://clinton4.nara.gov/WH/EOP/OSTP/html/00314.html. Accessed 3 May 2012.
    1. Gitter DM. The challenges of achieving open-source sharing of biobank data. Biotechnology Law Report. 2010;29:623–635.

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