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. 2012 Jul-Sep;35(3):E57-72.
doi: 10.1097/ANS.0b013e3182626180.

Parent and youth priorities during the transition to adulthood for youth with special health care needs and developmental disability

Roberta S Rehm  1 , Elena Fuentes-Afflick, Lucille T Fisher, Catherine A Chesla
Affiliations

Parent and youth priorities during the transition to adulthood for youth with special health care needs and developmental disability

Roberta S Rehm et al. ANS Adv Nurs Sci. 2012 Jul-Sep.

Abstract

Families undertake extensive planning during transition to adulthood so youth with concomitant special health care needs and developmental disabilities will have a long-term high quality of life. Findings from an interpretive field study involving 64 youth and their parents indicated that the meaning of adulthood was functioning as independently as possible with appropriate supports. Parental priorities included protecting health, assuring safety and security in multiple realms, finding meaningful activities after high school, and establishing supportive social relationships. These priorities demonstrated the need to broaden usual health care transition goals that focus on finding adult providers and optimizing self-management.

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References

    1. World Health Organization (WHO) Document A42/Technical Discussions/2. Geneva: WHO; 1989. The health of youth.
    1. Child and Adolescent Health Measurement Initiative: Data Resource Center for Child and Adolescent Health Web site. [Accessed March 1, 2012]; http://www.cahmi.org.
    1. Sices L, Harman JS, Kelleher KJ. Health-Care use and expenditures for children in special education with special health-care needs: Is dual classification a marker for high use? Public Health Rep. 2007;122:531–540. - PMC - PubMed
    1. American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians-American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110(6 pt 2):1304–1306. - PubMed
    1. American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians-American Society of Internal Medicine Transitions Clinical Report Authoring Group. Clinical report: Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2011;128:182–200. - PubMed

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