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. 2013 May;21(5):567-70.
doi: 10.1038/ejhg.2012.213. Epub 2012 Sep 12.

Public support and consent preference for biomedical research and biobanking in Jordan

Mamoun Ahram  1 , Areej Othman, Manal Shahrouri
Affiliations

Public support and consent preference for biomedical research and biobanking in Jordan

Mamoun Ahram et al. Eur J Hum Genet. 2013 May.

Abstract

The success of any biobank depends on a number of factors including public's view of research and the extent to which it is willing to participate in research. As a prototype of surrounding countries, public interest in research and biobanking in addition to the influence and type of informed consent for biobanking were investigated in Jordan. Data were collected as part of a national survey of 3196 individuals representing the Jordanian population. The majority of respondents (88.6%) had a positive perception of the level of research in Jordan and they overwhelmingly (98.2%) agreed to the concept of investing as a country in research. When respondents were asked if the presence of an informed consent would influence their decision to participate in biobanking, more individuals (19.8%) considered having an informed consent mechanism as a positive factor than those who considered it to have negative connotations (13.1%). However, a substantial portion (65%) did not feel it affected their decision. The majority of survey participants (64%) expressed willingness to participate in biobanking and over 90% of them preferred an opt-in consent form whether general (75.2%) or specific for disease or treatment (16.9%). These results indicate a promising ground for research and biobanking in Jordan. Educational programs or mass awareness campaigns to promote participation in biobanking and increase awareness about informed consent and individual rights in research will benefit both the scientific community as well as the public.

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Figures

Figure 1
Figure 1
The preferred type of a consent form among individuals willing to participate in biobanking (N=2051).
See this image and copyright information in PMC

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