Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2013 Mar 12;80(11 Suppl 3):S13-9.
doi: 10.1212/WNL.0b013e3182872e26.

Using the NIH Toolbox in special populations: considerations for assessment of pediatric, geriatric, culturally diverse, non-English-speaking, and disabled individuals

David Victorson  1 , Jennifer Manly, Kathleen Wallner-Allen, Nathan Fox, Christy Purnell, Hugh Hendrie, Richard Havlik, Mark Harniss, Susan Magasi, Helena Correia, Richard Gershon
Affiliations

Using the NIH Toolbox in special populations: considerations for assessment of pediatric, geriatric, culturally diverse, non-English-speaking, and disabled individuals

David Victorson et al. Neurology. .

Abstract

Background: In order to develop health outcomes measures that are relevant and applicable to the general population, it is essential to consider the needs and requirements of special subgroups, such as the young, elderly, disabled, and people of different ethnic and cultural backgrounds, within that population.

Methods: The NIH Toolbox project convened several working groups to address assessment issues for the following subgroups: pediatric, geriatric, cultural, non-English-speaking, and disabled. Each group reviewed all NIH Toolbox instruments in their entirety.

Results: Each working group provided recommendations to the scientific study teams regarding instrument content, presentation, and administration. When feasible and appropriate, instruments and administration procedures have been modified in accordance with these recommendations.

Conclusion: Health outcome measurement can benefit from expert input regarding assessment considerations for special subgroups.

PubMed Disclaimer

References

    1. Hahn EA, Cella D. Health outcomes assessment in vulnerable populations: measurement challenges and recommendations. Arch Phys Med Rehabil 2003;84:S35–S42 - PubMed
    1. Quality First: Better Health Care for All Americans. Final Report of the President's Advisory Commission on Consumer Protection and Quality in the Health Care Industry. Washington, DC: US Government Printing Office; 1998
    1. United States Agency for Healthcare Research Quality National healthcare disparities report 2010 [online]. Available at: http://www.ahrq.gov/qual/nhdr10/nhdr10.pdf Accessed February 4, 2013.
    1. Gershon RC, Cella D, Fox NA, Havlik RJ, Hendrie HC, Wagster MV. Assessment of neurological and behavioural function: the NIH Toolbox. Lancet Neurol 2010;9:138–139 - PubMed
    1. Kozinetz CA, Warren RW, Berseth CL, Aday LA, Sachdeva R, Kirkland RT. Health status of children with special health care needs: measurement issues and instruments. Clin Pediatr 1999;38:525–533 - PubMed

Publication types

Grants and funding