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. 2014 Aug;23(4):421-41.
doi: 10.1177/1054773813479377. Epub 2013 Apr 8.

Evaluation of the SCKnowIQ tool and reproductive CHOICES intervention among young adults with sickle cell disease or sickle cell trait

Agatha M Gallo  1 , Diana J Wilkie  2 , Edward Wang  3 , Richard J Labotka  4 , Robert E Molokie  5 , Christiane Stahl  6 , Patricia E Hershberger  7 , Zhongsheng Zhao  8 , Marie L Suarez  8 , Bonnye Johnson  9 , Cherese Pullum  8 , Rigoberto Angulo  8 , Alexis Thompson  10
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Evaluation of the SCKnowIQ tool and reproductive CHOICES intervention among young adults with sickle cell disease or sickle cell trait

Agatha M Gallo et al. Clin Nurs Res. 2014 Aug.

Abstract

The study purpose was to evaluate a computer-based questionnaire (SCKnowIQ) and CHOICES educational intervention using cognitive interviewing with childbearing-aged people with sickle cell disease (SCD) or trait (SCT). Ten control group participants completed the SCKnowIQ twice. Ten intervention group participants completed the SCKnowIQ before and after the CHOICES intervention. Most participants found the questionnaire items appropriate and responded to items as the investigators intended. Participants' responses indicated that the information on SCD and SCT and reproductive options was understandable, balanced, important, and new to some. Internal consistency and test-retest reliability were adequate (.47 to .87) for 4 of the 6 scales, with significant within-group changes in knowledge scores for the intervention group but not for the control group. Findings show evidence for potential efficacy of the intervention, but proof of efficacy requires a larger randomized study.

Keywords: cognitive interviews; computer-based education; reproductive; sickle cell disease (SCD); sickle cell trait (SCT).

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Figures

Figures 1a-1g
Figures 1a-1g
Pre-Post Trends by Group for SCKnowIQ Scale. Note: None of the Group × Time interactions were statistically significant in the small sample (N = 20). *p < .05 (pre-post paired t test) Scale (possible range of scores): meaning of higher score a. Knowledge (0-18): Higher score indicates better knowledge b. Decision (0-8): Higher score indicates higher likelihood of wanting to become a parent c. Influence (0-4): Higher score indicates more likely to be influenced by others d. Intention (0-47): Higher score indicates higher risk of having a child with SCD or SCT e. Behavior-17 items (0-38): Higher score indicates health behaviors led to lower risk of having a child with SCD or SCT f. Attitudes (0-16): Higher score indicates higher level of attitude against having a child with SCD or SCT g. Concern (0-8): Higher score indicates higher level of concerns about having a child with SCD or SCT
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