Use of an electronic patient-reported outcome measurement system to improve distress management in oncology
- PMID: 24128592
- PMCID: PMC4066540
- DOI: 10.1017/S1478951513000345
Use of an electronic patient-reported outcome measurement system to improve distress management in oncology
Abstract
Objective: Management of patient distress is a critical task in cancer nursing and cancer practice. Here we describe two examples of how an electronic patient-reported outcome (ePRO) measurement system implemented into routine oncology care can practically aid clinical and research tasks related to distress management.
Methods: Tablet personal computers were used to routinely complete a standardized ePRO review of systems surveys at point of care during every encounter in the Duke Oncology outpatient clinics. Two cases of use implementation are explored: (1) triaging distressed patients for optimal care, and (2) psychosocial program evaluation research.
Results: Between 2009 and 2011, the ePRO system was used to collect information during 17,338 Duke Oncology patient encounters. The system was used to monitor patients for psychosocial distress employing an electronic clinical decision support algorithm, with 1,952 (11.3%) referrals generated for supportive services. The system was utilized to examine the efficacy of a psychosocial care intervention documenting statistically significant improvements in distress, despair, fatigue, and quality of life (QOL) in 50 breast cancer patients.
Significance of results: ePRO solutions can guide best practice management of cancer patient distress. Nurses play a key role in implementation and utilization.
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References
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- Abernethy AP, Herndon JE, Wheeler JL, et al. Feasibility and acceptability to patients of a longitudinal system for evaluating cancer-related symptoms and quality of life: Pilot study of an e/tablet data collection system in academic oncology. Journal of Pain and Symptom Management. 2009;37:1027–1038. - PubMed
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- Abernethy AP, Ahmad A, Zafar SY, et al. Electronic patient-reported data capture as a foundation of rapid learning cancer care. Medical Care. 2010a;48(Suppl 6):S32–S38. - PubMed
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- Abernethy AP, Zafar SY, Uronis H, et al. Validation of the Patient Care Monitor (version 2.0), a review of a systems instrument for cancer patients. Journal of Pain and Symptom Management. 2010c;40:545–558. - PubMed
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