Building trust for engagement of minorities in human subjects research: is the glass half full, half empty, or the wrong size?

Affiliations

¹ Sandra C. Quinn is with the Maryland Center for Health Equity and Department of Family Science, School of Public Health, University of Maryland, College Park. Nancy E. Kass is with the Berman Institute of Bioethics and Johns Hopkins Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD. Stephen B. Thomas is with the Maryland Center for Health Equity and the Department of Health Services Administration, School of Public Health, University of Maryland, College Park.

Editorial

Sandra C Quinn et al. Am J Public Health. 2013 Dec.

. 2013 Dec;103(12):2119-21.

doi: 10.2105/AJPH.2013.301685. Epub 2013 Oct 17.

¹ Sandra C. Quinn is with the Maryland Center for Health Equity and Department of Family Science, School of Public Health, University of Maryland, College Park. Nancy E. Kass is with the Berman Institute of Bioethics and Johns Hopkins Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD. Stephen B. Thomas is with the Maryland Center for Health Equity and the Department of Health Services Administration, School of Public Health, University of Maryland, College Park.

No abstract available

Figures

1. The Minority Health & Health Equity Archive. Statement of Herman Shaw: living participant in Tuskegee Syphilis Study. 1997. Available at: http://health-equity.pitt.edu/4151. Accessed October 10, 2013.
1. The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research. Washington, DC: The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research; 1979. p. 10. - PubMed
1. NIH Office of Extramural Research. NIH policy and guidelines on the inclusion of women and minorities as subjects in clinical research – amended, October, 2001. Available at: http://grants.nih.gov/grants/funding/women_min/guidelines_amended_10_200.... Accessed September 15, 2013.
1. National Institute of Health. NIH policy and guidelines on the inclusion of children as participants in research involving human subjects. Available at: http://grants.nih.gov/grants/guide/notice-files/not98-024.html. Accessed September 15, 2013.
1. Mastroianni AC, Faden R, Federman D, editors. Women and Health Research: Ethical and Legal Issues of Including Women in Clinical Studies. Washington, DC: Institute of Medicine, National Academy Press; 1994. - PubMed