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. 2013 Dec;103(12):2165-73.
doi: 10.2105/AJPH.2013.301286. Epub 2013 Oct 17.

Paradigm shifts in disability and health: toward more ethical public health research

Katherine E McDonald  1 , Dora M Raymaker
Affiliations

Paradigm shifts in disability and health: toward more ethical public health research

Katherine E McDonald et al. Am J Public Health. 2013 Dec.

Abstract

Disability is often considered a health outcome disproportionately experienced by minority groups. It is also possible to view people with disabilities as a minority group that itself experiences health disparities. Calls to reduce these disparities necessitate the inclusion of people with developmental disabilities in research, although resulting ethical issues can thwart scientific progress. Using disability rights principles can help address ethical challenges and promote safe, respectful public health research. Examples include applying human rights frameworks, providing accommodations, attending to power, countering legacies of deficits-based models of disability, and transforming access to science more broadly. Collectively, these strategies can encourage broader engagement in safe, respectful, inclusive public health research aimed at promoting the health and well-being of people with developmental disabilities.

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References

    1. Erickson W, Lee C, von Schrader S. Disability Statistics From the 2010 American Community Survey (ACS) Ithaca, NY: Cornell University Rehabilitation Research and Training Center on Disability Demographics and Statistics; 2012.
    1. Abel EL, Sokol RJ. Incidence of fetal alcohol syndrome and economic impact of FAS-related anomalies. Drug Alcohol Depend. 1987;19(1):51–70. - PubMed
    1. Chávez GF, Cordero JF, Becerra JE. Leading major congenital malformations among minority groups in the United States, 1981–1986. MMWR CDC Surveill Summ. 1988;37(3):17–24. - PubMed
    1. Lakin KC. National Goals and Research for People With Intellectual and Developmental Disabilities. Washington, DC: American Association on Mental Retardation; 2005.
    1. Drum C, Krahn G, Bersani H. Disability and Public Health. Washington, DC: American Public Health Association and the American Association on Intellectual and Developmental Disabilities; 2009.

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