Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2013 Dec 1;188(11):1370-3.
doi: 10.1164/rccm.201307-1235LE.

Surrogate consent for genetic testing, the reconsent process, and consent for long-term outcomes in acute respiratory distress syndrome trials

Affiliations

Surrogate consent for genetic testing, the reconsent process, and consent for long-term outcomes in acute respiratory distress syndrome trials

Alexandra Smart et al. Am J Respir Crit Care Med. .
No abstract available

PubMed Disclaimer

Figures

<i>Figure 1.</i>
Figure 1.
Diagram of the reconsent process.

References

    1. Luce JM, Cook DJ, Martin TR, Angus DC, Boushey HA, Curtis JR, Heffner JE, Lanken PN, Levy MM, Polite PY, et al. American Thoracic Society. The ethical conduct of clinical research involving critically ill patients in the United States and Canada: principles and recommendations. Am J Respir Crit Care Med. 2004;170:1375–1384. - PubMed
    1. Chen DT. Why surrogate consent is important: a role for data in refining ethics policy and practice. Neurology. 2008;71:1562–1563. - PubMed
    1. Simon CM, L’heureux J, Murray JC, Winokur P, Weiner G, Newbury E, Shinkunas L, Zimmerman B. Active choice but not too active: public perspectives on biobank consent models. Genet Med. 2011;13:821–831. - PMC - PubMed
    1. Sterling R, Henderson GE, Corbie-Smith G. Public willingness to participate in and public opinions about genetic variation research: a review of the literature. Am J Public Health. 2006;96:1971–1978. - PMC - PubMed
    1. Bogner HR, Wittink MN, Merz JF, Straton JB, Cronholm PF, Rabins PV, Gallo JJ. Personal characteristics of older primary care patients who provide a buccal swab for apolipoprotein E testing and banking of genetic material: the spectrum study. Community Genet. 2004;7:202–210. - PMC - PubMed

Publication types