Present and future challenges in the treatment of haemophilia: the patient's perspective

Affiliations

¹ Italian Federation of Haemophilia Societies (FedEmo), Rome, Italy.
² Italian Federation of Haemophilia Societies Medical Council, Rome, Italy Thrombosis and Haemostasis Unit, Giannina Gaslini Children's Hospital, Genoa, Italy.
³ Italian National Blood Centre, National Institute of Health, Rome, Italy.
⁴ Italian Federation of Haemophilia Societies Medical Council, Rome, Italy Department of Biomedical Sciences and Human Oncology, Paediatric Unit, University of Bari, Bari, Italy.
⁵ Department of Internal Medicine, University of Perugia, Perugia, Italy.
⁶ Italian Federation of Haemophilia Societies Medical Council, Rome, Italy Department of Clinical Medicine and Surgery Federico II University of Naples, Naples, Italy.
⁷ Italian Federation of Haemophilia Societies Medical Council, Rome, Italy Department of Medicine and Ageing Sciences, University of Chieti, Chieti, Italy.
⁸ Italian Federation of Haemophilia Societies Medical Council, Rome, Italy Oxford Haemophilia and Thrombosis Centre, Oxford, United Kingdom.

PMID: 24333318
PMCID: PMC3853977
DOI: 10.2450/2013.013s

Review

Present and future challenges in the treatment of haemophilia: the patient's perspective

Romano Arcieri et al. Blood Transfus. 2013 Sep.

. 2013 Sep;11 Suppl 4(Suppl 4):s82-5.

doi: 10.2450/2013.013s.

Affiliations

¹ Italian Federation of Haemophilia Societies (FedEmo), Rome, Italy.
² Italian Federation of Haemophilia Societies Medical Council, Rome, Italy Thrombosis and Haemostasis Unit, Giannina Gaslini Children's Hospital, Genoa, Italy.
³ Italian National Blood Centre, National Institute of Health, Rome, Italy.
⁴ Italian Federation of Haemophilia Societies Medical Council, Rome, Italy Department of Biomedical Sciences and Human Oncology, Paediatric Unit, University of Bari, Bari, Italy.
⁵ Department of Internal Medicine, University of Perugia, Perugia, Italy.
⁶ Italian Federation of Haemophilia Societies Medical Council, Rome, Italy Department of Clinical Medicine and Surgery Federico II University of Naples, Naples, Italy.
⁷ Italian Federation of Haemophilia Societies Medical Council, Rome, Italy Department of Medicine and Ageing Sciences, University of Chieti, Chieti, Italy.
⁸ Italian Federation of Haemophilia Societies Medical Council, Rome, Italy Oxford Haemophilia and Thrombosis Centre, Oxford, United Kingdom.

PMID: 24333318
PMCID: PMC3853977
DOI: 10.2450/2013.013s

No abstract available

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References

1. Bolton-Maggs PH, Pasi KJ. Haemophilia A and B. Lancet. 2003;361:1801–9. - PubMed
1. Tagliaferri A, Rivolta GF, Iorio A, et al. Mortality and causes of death in Italian persons with haemophilia, 1990–2007. Haemophilia. 2010;16:437–46. - PubMed
1. Coppola A, Franchini M, Tagliaferri A. Prophylaxis in people with haemophilia. Thromb Haemost. 2009;101:674–81. - PubMed
1. Gringeri A, Lundin B, von Mackensen S, et al. A randomized clinical trial of prophylaxis in children with hemophilia A (the ESPRIT Study) J Thromb Haemost. 2011;9:700–10. - PubMed
1. Makris M. Prophylaxis in haemophilia should be life-long. Blood Transfus. 2012;10:165–8. - PMC - PubMed

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Present and future challenges in the treatment of haemophilia: the patient's perspective

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Present and future challenges in the treatment of haemophilia: the patient's perspective

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