doi: 10.1016/j.urolonc.2013.09.016.
"Use it or lose it" as an alternative approach to protect genetic privacy in personalized medicine
Affiliations
- PMID: 24445287
- PMCID: PMC3970576
- DOI: 10.1016/j.urolonc.2013.09.016
Item in Clipboard
"Use it or lose it" as an alternative approach to protect genetic privacy in personalized medicine
Urol Oncol.
2014 Feb.
No abstract available
Keywords: ELSI; Genetic information; Precision medicine; Privacy; Whole genome sequencing.
Conflict of interest statement
The authors have no conflicts of interest to disclose.
Similar articles
-
Integrating genomics into clinical oncology: ethical and social challenges from proponents of personalized medicine.Urol Oncol. 2014 Feb;32(2):187-92. doi: 10.1016/j.urolonc.2013.10.009. Urol Oncol. 2014. PMID: 24445286 Free PMC article.
-
Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent.EMBO Rep. 2010 Jun;11(6):416-9. doi: 10.1038/embor.2010.69. Epub 2010 May 7. EMBO Rep. 2010. PMID: 20448662 Free PMC article.
-
When Biology Gets Personal: Hidden Challenges of Privacy and Ethics in Biological Big Data.Pac Symp Biocomput. 2019;24:386-390. Pac Symp Biocomput. 2019. PMID: 30864339 Free PMC article.
-
[Ethical and social issues associated with genomic medicine].Praxis (Bern 1994). 2014 May 7;103(10):573-7. doi: 10.1024/1661-8157/a001656. Praxis (Bern 1994). 2014. PMID: 24800769 Review. French.
-
Patient privacy in the genomic era.Praxis (Bern 1994). 2014 May 7;103(10):579-86. doi: 10.1024/1661-8157/a001657. Praxis (Bern 1994). 2014. PMID: 24800770 Review.
Cited by
-
Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe.Front Genet. 2020 May 6;11:303. doi: 10.3389/fgene.2020.00303. eCollection 2020. Front Genet. 2020. PMID: 32435258 Free PMC article.
-
Using ncRNAs as Tools in Cancer Diagnosis and Treatment-The Way towards Personalized Medicine to Improve Patients' Health.Int J Mol Sci. 2022 Aug 19;23(16):9353. doi: 10.3390/ijms23169353. Int J Mol Sci. 2022. PMID: 36012617 Free PMC article. Review.
-
Is there a duty to recontact in light of new genetic technologies? A systematic review of the literature.Genet Med. 2015 Aug;17(8):668-78. doi: 10.1038/gim.2014.173. Epub 2014 Dec 11. Genet Med. 2015. PMID: 25503495
References
-
- President’s Commission for the Study of Bioethical Issues. Privacy and Progress in Whole Genome Squencing. [May 10, 2013];2012 Oct; Available at http://bioethics.gov/sites/default/files/PrivacyProgress508_1.pdf.
-
- Brenner S. Be prepared for the big genome leak. Nature. 2013;498:139. - PubMed
-
- McGuire AL, et al. Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider. Genet Med. 2008 Jul;10(7):495–9. doi:10.1097GIM.0b013e31817a8aaa. - PubMed
-
- Lunshof JE, Chadwick R, Vorhaus DB, Church GM. From genetic privacy to open consent. Nat Rev Genet. 2008;5:406–411. - PubMed
MeSH terms
Grants and funding
LinkOut - more resources
Full Text Sources
Other Literature Sources
