The "right not to know" in the genomic era: time to break from tradition?

Affiliations

Comment

Benjamin E Berkman et al. Am J Bioeth. 2014.

. 2014;14(3):28-31.

doi: 10.1080/15265161.2014.880313.

No abstract available

Comment on

Addressing the ethical challenges in genetic testing and sequencing of children.
Clayton EW, McCullough LB, Biesecker LG, Joffe S, Ross LF, Wolf SM; Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group. Clayton EW, et al. Am J Bioeth. 2014;14(3):3-9. doi: 10.1080/15265161.2013.879945. Am J Bioeth. 2014. PMID: 24592828 Free PMC article.

1. Abdul-Karim R, Berkman BE, Wendler D, et al. Disclosure of incidental findings from next-generation sequencing in pediatric genomic research. Pediatrics. 2013;131(3):564–571. - PMC - PubMed
1. Allyse M, Michie M. Not-so-incidental findings: The ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing. Trends in Biotechnology. 2013;31(8):439–441. - PMC - PubMed
1. American Academy of Pediatrics Committee on Bioethics, Committee on Genetics, and American College of Medical Genetics and Genomics Social Ethical and Legal Issues Committee. Policy statement: Ethical and policy issues in genetic testing and screening of children. Pediatrics. 2013;131(3):620–622. - PubMed
1. Burke W, Antommaria AHM, Bennet R, et al. Recommendations for returning genomic incidental findings? We need to talk! Genetics in Medicine. 2013;15(11):854–859. - PMC - PubMed
1. Clayton EW, McCullough LB, Biessecker LG, Joffe S, Ross LF, Wolf SM. Addressing the ethical challenges in genetic testing and sequencing of children. American Journal of Bioethics. 2014;14(3):3–9. - PMC - PubMed