'Timely' diagnosis of dementia: what does it mean? A narrative analysis of GPs' accounts
- PMID: 24595135
- PMCID: PMC3948579
- DOI: 10.1136/bmjopen-2013-004439
'Timely' diagnosis of dementia: what does it mean? A narrative analysis of GPs' accounts
Abstract
Objective: To explore general practitioners' (GP) perspectives on the meaning of 'timeliness' in dementia diagnosis.
Design: Narrative interview study.
Setting: UK academic department of primary care.
Participants: Seven practising GPs with experience of conveying a diagnosis of dementia.
Methods: GPs' narrative commentaries of encounters with patients with suspected dementia were audio-recorded and transcribed resulting in 51 pages of text (26 757words). A detailed narrative analysis of doctors' accounts was conducted.
Results: Diagnosis of dementia is a complex medical and social practice. Clinicians attend to multiple competing priorities while providing individually tailored patient care, against a background of shifting political and institutional concerns. Interviewees drew on a range of explanations about the nature of generalism to legitimise their claims about whether and how they made a diagnosis, constructing their accounts of what constituted 'timeliness'. Three interlinked analytical themes were identified: (1) diagnosis as a collective, cumulative, contingent process; (2) taking care to ensure that diagnosis-if reached at all-is opportune; (3) diagnosis of dementia as constitutive or consequential, but also a diagnosis whose consequences are unpredictable.
Conclusions: Timeliness in the diagnosis of dementia involves balancing a range of judgements and is not experienced in terms of simple chronological notions of time. Reluctance or failure to make a diagnosis on a particular occasion does not necessarily point to GPs' lack of awareness of current policies, or to a set of training needs, but commonly reflects this range of nuanced balancing judgements, often negotiated with patients and their families with detailed attention to a particular context. In the case of dementia, the taken-for-granted benefits of early diagnosis cannot be assumed, but need to be 'worked through' on an individual case-by-case basis. GPs tend to value 'rightness' of time over concerns about 'early' diagnosis.
Keywords: Primary Care; Qualitative Research.
Figures
References
-
- Phillips J, Pond D, Goode S. Timely diagnosis: can we do better? Scullin, ACT: Alzheimer's Australia, 2011
-
- All-Party Parliamentary Group on Dementia Unlocking diagnosis: the key to improving the lives of people with dementia. London: House of Commons, 2012
-
- Lakey L, Chandaria K, Quince C, et al. Dementia 2012: a national challenge. London: Alzheimer's Society, 2012
-
- World Health Organization Dementia. A public health priority. World Health Organization and Alzheimer's Disease International, 2012
-
- Department of Health Prime Minister's Challenge on Dememtia—delivering major improvements in dementia care and research by 2015. London: Department of Health, 2012
MeSH terms
LinkOut - more resources
Full Text Sources
Other Literature Sources
Medical