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. 2014 Apr 23:14:109.
doi: 10.1186/1471-2431-14-109.

Interventions to support children's engagement in health-related decisions: a systematic review

Bryan Feenstra, Laura Boland, Margaret L Lawson, Denise Harrison, Jennifer Kryworuchko, Michelle Leblanc, Dawn Stacey  1
Affiliations

Interventions to support children's engagement in health-related decisions: a systematic review

Bryan Feenstra et al. BMC Pediatr. .

Abstract

Background: Children often need support in health decision-making. The objective of this study was to review characteristics and effectiveness of interventions that support health decision-making of children.

Methods: A systematic review. Electronic databases (PubMed, the Cochrane Library, Web of Science, Scopus, ProQuest Dissertations and Theses, CINAHL, PsycINFO, MEDLINE, and EMBASE) were searched from inception until March 2012. Two independent reviewers screened eligibility: a) intervention studies; b) involved supporting children (≤18 years) considering health-related decision(s); and c) measured decision quality or decision-making process outcomes. Data extraction and quality appraisal were conducted by one author and verified by another using a standardized data extraction form. Quality appraisal was based on the Cochrane Risk of Bias tool.

Results: Of 4313 citations, 5 studies were eligible. Interventions focused on supporting decisions about risk behaviors (n = 3), psycho-educational services (n = 1), and end of life (n = 1). Two of 5 studies had statistically significant findings: i) compared to attention placebo, decision coaching alone increased values congruence between child and parent, and child satisfaction with decision-making process (lower risk of bias); ii) compared to no intervention, a workshop with weekly assignments increased overall decision-making quality (higher risk of bias).

Conclusions: Few studies have focused on interventions to support children's participation in decisions about their health. More research is needed to determine effective methods for supporting children's health decision-making.

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Literature flow diagram.
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References

    1. Coyne I. Consultation with children in hospital: children, parents' and nurses' perspectives. J Clin Nurs. 2006;15(1):61–71. doi: 10.1111/j.1365-2702.2005.01247.x. - DOI - PubMed
    1. Coyne I, Harder M. Children's participation in decision-making: balancing protection with shared decision-making using a situational perspective. J Child Health Care. 2011;15(4):312–319. doi: 10.1177/1367493511406570. - DOI - PubMed
    1. Moore L, Kirk S. A literature review of children's and young people's participation in decisions relating to health care. J Clin Nurs. 2010;19(15–16):2215–2225. - PubMed
    1. Tiffenberg J, Wood E, Alonso A, Tossuti M, Vincente M. A randomized trial of ACINDES: a child centered training model for children with chronic illnesses (asthma and epilepsy) J Urban Health. 2000;77(2):280–297. doi: 10.1007/BF02390539. - DOI - PMC - PubMed
    1. Adelman H, Kaiser-Boyd N, Taylor L. Children's participation in consent for psychotherapy and their subsequent response to treatment. J Clin Child Psychol. 1984;13:170–178. doi: 10.1080/15374418409533186. - DOI

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