Patient-centred management in idiopathic pulmonary fibrosis: similar themes in three communication models

Abstract

The progressive and highly variable course of idiopathic pulmonary fibrosis (IPF) can present patients and their families with various challenges at different points of the disease. Structured communication between the healthcare professional and the patient is vital to ensure the best possible support and treatment for the patient. While research in this area has been limited, an increasing number of studies are emerging that support the role of communication in patients with debilitating and fatal lung diseases. Communication models used in other conditions that share many challenges with IPF, such as cancer, provide important insights for developing specifically designed patient support and communications models in IPF. Three communication models will be described: 1) the patient-centred care model (for oncology); 2) the three pillars of care model (for IPF); and 3) the Brompton model of care (for interstitial lung disease). Themes common to all three models include comprehensive patient education, encouraged patient participation and an accessible healthcare system, all supported by a collaborative provider-patient relationship. The development of effective communication skills is an on-going process and it is recommended to examine communication models used in other chronic diseases.

Figure 1.

Patient-centred care model in oncology. Reproduced from [19] with permission from the publisher.

Figure 2.

Patient-centred care model in oncology: potential health outcomes from better communication. Reproduced from [19] with permission from the publisher.

Figure 3.

The Brompton model of care. Referrals to the interstitial lung disease unit at the Royal Brompton Hospital (London, UK) in 2012. IPF: idiopathic pulmonary fibrosis; CTD: connective tissue disease; HP: hypersensitivity pneumonitis.

Figure 4.

The Brompton model of care: core members and interdisciplinary team members for interstitial lung disease (ILD) patients. MDT: multidisciplinary team. ^#: to be appointed.