International spinal cord injury upper extremity basic data set

F Biering-Sørensen¹, A Bryden², A Curt³, J Friden⁴, L A Harvey⁵, M J Mulcahey⁶, M R Popovic⁷, A Prochazka⁸, K A Sinnott⁹, G Snoek¹⁰

Affiliations

¹ Department for Spinal Cord Injuries, Glostrup Hospital, University of Copenhagen, Copenhagen, Denmark.
² The Cleveland FES Center/Case Western Reserve University, Cleveland, OH, USA.
³ Spinal Cord Injury Center, University of Zurich and University Hospital Balgrist, Zurich, Switzerland.
⁴ Department of Hand Surgery, Institute of Clinical Sciences, Sahlgrenska University Hospital and University of Gothenburg, Gothenburg, Sweden.
⁵ Rehabilitation Studies Unit, Northern Clinical School, Sydney School of Medicine, University of Sydney, Sydney, New South Wales, Australia.
⁶ Jefferson School of Health Professions, Thomas Jefferson University, Philadelphia, PA, USA.
⁷ Institute of Biomaterials and Biomedical Engineering, University of Toronto, Toronto, Ontario, Canada.
⁸ Division of Neuroscience, University of Alberta, Edmonton, Alberta, Canada.
⁹ Burwood Academy of Independent Living, Burwood Hospital, and Department of Orthopaedic Surgery and Musculoskeletal Medicine, University of Otago, Christchurch, New Zealand.
¹⁰ Roessingh Rehabilitation Center, Enschede, The Netherlands.

PMID: 24891012
DOI: 10.1038/sc.2014.87

Review

International spinal cord injury upper extremity basic data set

F Biering-Sørensen et al. Spinal Cord. 2014 Sep.

. 2014 Sep;52(9):652-7.

doi: 10.1038/sc.2014.87. Epub 2014 Jun 3.

Authors

F Biering-Sørensen¹, A Bryden², A Curt³, J Friden⁴, L A Harvey⁵, M J Mulcahey⁶, M R Popovic⁷, A Prochazka⁸, K A Sinnott⁹, G Snoek¹⁰

Affiliations

¹ Department for Spinal Cord Injuries, Glostrup Hospital, University of Copenhagen, Copenhagen, Denmark.
² The Cleveland FES Center/Case Western Reserve University, Cleveland, OH, USA.
³ Spinal Cord Injury Center, University of Zurich and University Hospital Balgrist, Zurich, Switzerland.
⁴ Department of Hand Surgery, Institute of Clinical Sciences, Sahlgrenska University Hospital and University of Gothenburg, Gothenburg, Sweden.
⁵ Rehabilitation Studies Unit, Northern Clinical School, Sydney School of Medicine, University of Sydney, Sydney, New South Wales, Australia.
⁶ Jefferson School of Health Professions, Thomas Jefferson University, Philadelphia, PA, USA.
⁷ Institute of Biomaterials and Biomedical Engineering, University of Toronto, Toronto, Ontario, Canada.
⁸ Division of Neuroscience, University of Alberta, Edmonton, Alberta, Canada.
⁹ Burwood Academy of Independent Living, Burwood Hospital, and Department of Orthopaedic Surgery and Musculoskeletal Medicine, University of Otago, Christchurch, New Zealand.
¹⁰ Roessingh Rehabilitation Center, Enschede, The Netherlands.

PMID: 24891012
DOI: 10.1038/sc.2014.87

Abstract

Objective: To develop an International Spinal Cord Injury (SCI) Upper Extremity Basic Data Set as part of the International SCI Data Sets, which facilitates consistent collection and reporting of basic upper extremity findings in the SCI population.

Setting: International.

Methods: A first draft of a SCI Upper Extremity Data Set was developed by an international working group. This was reviewed by many different organisations, societies and individuals over several months. A final version was created.

Variables: The final version of the International SCI Upper Extremity Data Set contains variables related to basic hand-upper extremity function, use of assistive devices, SCI-related complications to upper extremity function and upper extremity/hand reconstructive surgery. Instructions for data collection and the data collection form are freely available on the ISCoS website (www.iscos.org.uk).

Conclusion: The International SCI Upper Extremity Basic Data Set will facilitate consistent collection and reporting of basic upper extremity findings in the SCI population.

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Comment in

International spinal cord injury upper extremity basic data set version 1.1.
Biering-Sørensen F, Bryden A, Curt A, Friden J, Harvey LA, Mulcahey MJ, Popovic MR, Prochazka A, Sinnott KA, Snoek G. Biering-Sørensen F, et al. Spinal Cord. 2015 Dec;53(12):890. doi: 10.1038/sc.2015.101. Epub 2015 Jun 9. Spinal Cord. 2015. PMID: 26055817 No abstract available.

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International spinal cord injury upper extremity basic data set

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International spinal cord injury upper extremity basic data set

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