Information Needs Priorities in Patients Diagnosed With Cancer: A Systematic Review
- PMID: 24910808
- PMCID: PMC4042668
Information Needs Priorities in Patients Diagnosed With Cancer: A Systematic Review
Abstract
Information-sharing is an integral part of cancer care. Several studies have examined the information needs of patients with various types of cancer. However, the priorities of information needs among patients with cancer have not been reported. A systematic review was performed to identify published studies that examined priorities of information needs in patients with cancer. PubMed (1966 to February 2012), PsycINFO (1967 to February 2012), and CINAHL (1982 to February 2012) databases were searched to access relevant medical, psychological, and nursing literature. Thirty studies involving patients with breast, prostate, lung, colorectal, gynecologic, hematologic, and other cancers revealed patients' information needs priorities. The top three patient information priorities were related to prognosis, diagnosis, and treatment options. The top information priorities reported in this systematic review could serve as a start to elicit patients' information needs and guide patient education across the cancer care continuum. Being able to prioritize the most-needed information can make patient encounters more meaningful and useful.
Figures







Similar articles
-
Promoting and supporting self-management for adults living in the community with physical chronic illness: A systematic review of the effectiveness and meaningfulness of the patient-practitioner encounter.JBI Libr Syst Rev. 2009;7(13):492-582. doi: 10.11124/01938924-200907130-00001. JBI Libr Syst Rev. 2009. PMID: 27819974
-
Top Information Need Priorities of Older Adults Newly Diagnosed With Active Myeloma.J Adv Pract Oncol. 2015 Jan-Feb;6(1):14-21. J Adv Pract Oncol. 2015. PMID: 26413371 Free PMC article. Review.
-
Beyond the black stump: rapid reviews of health research issues affecting regional, rural and remote Australia.Med J Aust. 2020 Dec;213 Suppl 11:S3-S32.e1. doi: 10.5694/mja2.50881. Med J Aust. 2020. PMID: 33314144
-
Palliative care experiences of adult cancer patients from ethnocultural groups: a qualitative systematic review protocol.JBI Database System Rev Implement Rep. 2015 Jan;13(1):99-111. doi: 10.11124/jbisrir-2015-1809. JBI Database System Rev Implement Rep. 2015. PMID: 26447011
-
Perceived need for information of patients with haematological malignancies: a literature review.J Clin Nurs. 2015 Feb;24(3-4):353-69. doi: 10.1111/jocn.12630. Epub 2014 Jun 3. J Clin Nurs. 2015. PMID: 24890671 Review.
Cited by
-
Facts and Fears in Public Reporting: Patients' Information Needs and Priorities When Selecting a Hospital for Cancer Care.Med Decis Making. 2019 Aug;39(6):632-641. doi: 10.1177/0272989X19855050. Epub 2019 Jun 21. Med Decis Making. 2019. PMID: 31226909 Free PMC article.
-
Making an informed decision of Korean cancer patients: the discrepancy between a patient's recall of information and the information needed for acquisition of radiotherapy informed consent.Support Care Cancer. 2018 Jan;26(1):297-303. doi: 10.1007/s00520-017-3848-8. Epub 2017 Aug 8. Support Care Cancer. 2018. PMID: 28791486
-
Association of the Extent of Internet Use by Patients With Cancer With Social Support Among Patients and Change in Patient-Reported Treatment Outcomes During Inpatient Rehabilitation: Cross-sectional and Longitudinal Study.JMIR Cancer. 2023 May 17;9:e39246. doi: 10.2196/39246. JMIR Cancer. 2023. PMID: 37195742 Free PMC article.
-
Predictors of information needs among women with breast cancer receiving adjuvant therapy at Tikur Anbessa specialized hospital, Addis Ababa Ethiopia: a cross-sectional study.BMC Womens Health. 2023 Dec 8;23(1):659. doi: 10.1186/s12905-023-02805-2. BMC Womens Health. 2023. PMID: 38066595 Free PMC article.
-
Informational needs of brain metastases patients and their caregivers.Neurooncol Pract. 2019 Jan;6(1):47-60. doi: 10.1093/nop/npy008. Epub 2018 Apr 20. Neurooncol Pract. 2019. PMID: 31386069 Free PMC article.
References
-
- Almyroudi Augoustina, Degner Lesley F, Paika Vassiliki, Pavlidis Nicholaos, Hyphantis Thomas. Decision-making preferences and information needs among Greek breast cancer patients. Psycho-oncology. 2011;20:871–879. - PubMed
-
- Andreassen S, Randers I, Näslund E, Stockeld D, Mattiasson A-C. Information needs following a diagnosis of oesophageal cancer; self-perceived information needs of patients and family members compared with the perceptions of healthcare professionals: a pilot study. European journal of cancer care. 2007;16:277–285. - PubMed
-
- Beaver Kinta, Booth Katie. Information needs and decision-making preferences: comparing findings for gynaecological, breast and colorectal cancer. European journal of oncology nursing : the official journal of European Oncology Nursing Society. 2007;11:409–416. - PubMed
-
- Bilodeau B A, Degner L F. Information needs, sources of information, and decisional roles in women with breast cancer. Oncology nursing forum. 1996;23:691–696. - PubMed
Grants and funding
LinkOut - more resources
Full Text Sources