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. 2014 Jun 13:14:250.
doi: 10.1186/1472-6963-14-250.

Key concepts in consumer and community engagement: a scoping meta-review

Pooria Sarrami-Foroushani  1 , Joanne Travaglia, Deborah Debono, Jeffrey Braithwaite
Affiliations

Key concepts in consumer and community engagement: a scoping meta-review

Pooria Sarrami-Foroushani et al. BMC Health Serv Res. .

Abstract

Background: Although consumer and community engagement (CCE) in health care is receiving increasing attention, research and practice in this area are hampered by the variability of concepts and terminology commonly employed. This scoping meta-review aims to identify key CCE concepts and examine terminology used to describe them.

Methods: In a scoping meta-review, an extensive list of 47 phrases and 11 Medical Subject Headings (MeSH) was used to undertake a comprehensive and systematic search in PubMed Central, Embase, EBM reviews, CINAHL, APAPsycNET, and Scopus.

Results: 59 systematic reviews met the selection criteria and were included in the final analysis. The analysis identified nine different concepts related to CCE: shared decision making, self-management, CCE in health care systems, community-based health promotion, providing access to health care, rehabilitation, participation in research, collaboration in research design and conduct, and peer support. The identified concepts differ from each other in many aspects including the aim of the activity, the role of consumers and the type of professionals' involvement. Each concept was described by a range of terms, with some terms shared by different concepts. In addition, two overlapping concepts of patient-centeredness and patient empowerment were recognised.

Conclusions: This study describes CCE-related key concepts and provides new insight into their relationship with different CCE-related terms. Identification of key CCE-related concepts and terms will be useful to focus future studies and initiatives and enhance production of CCE-related evidence.

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Figures

Figure 1
Figure 1
Relationship between CCE-related concepts and related phrases. Concepts are labelled in circles with bold font, which are connected to the related phrases illustrated by squares. Phrases are labelled only if they are shared by three or more concepts. This Figure is illustrating the overlaps between phrases for different concepts, and also it illustrates that each concept is described by different phrases.
Figure 2
Figure 2
Summary of study selection and exclusion.
See this image and copyright information in PMC

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