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. 2014 Sep-Oct;37(5):321-30.
doi: 10.1097/NCC.0000000000000159.

A tailored Web-based psychoeducational intervention for cancer patients and their family caregivers

Laurel Northouse  1 , Ann Schafenacker, Kathryn L C Barr, Maria Katapodi, Hyojin Yoon, Kelly Brittain, Lixin Song, David L Ronis, Larry An
Affiliations

A tailored Web-based psychoeducational intervention for cancer patients and their family caregivers

Laurel Northouse et al. Cancer Nurs. 2014 Sep-Oct.

Abstract

Background: Most programs addressing psychosocial concerns of cancer survivors are in-person programs that are expensive to deliver, have limited availability, and seldom deal with caregivers' concerns.

Objective: This study examined the feasibility of translating an efficacious nurse-delivered program (FOCUS Program) for patients and their caregivers to a tailored, dyadic Web-based format. Specific aims were to (1) test the preliminary effects of the Web-based intervention on patient and caregiver outcomes, (2) examine participants' program satisfaction, and (3) determine the feasibility of using a Web-based delivery format.

Methods: A phase 2 feasibility study was conducted with cancer patients (lung, breast, colorectal, prostate) and their family caregivers (N = 38 dyads). The Web-based intervention provided information and support tailored to the unique characteristics of each patient, caregiver, and their dyadic relationship. Primary outcomes were emotional distress and quality of life. Secondary outcomes were benefits of illness/caregiving, communication, support, and self-efficacy. Analyses included descriptive statistics and repeated-measures analysis of variance.

Results: Dyads had a significant decrease in emotional distress, increase in quality of life, and perceived more benefits of illness/caregiving. Caregivers also had significant improvement in self-efficacy. There were no changes in communication. Participants were satisfied with program usability, but recommended additional content.

Conclusions: It was possible to translate a clinician-delivered program to a Web-based format that was easy to use and had positive effects on dyadic outcomes.

Implications for practice: The Web-based program is a promising way to provide psychosocial care to more patients and caregivers using fewer personnel. It needs further testing in a larger randomized clinical trial.

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Conflict of interest statement

Conflicts of interest and sources of funding. The authors have no conflicts of interest to disclose.

Figures

Figure 1
Figure 1
Theoretical framework and study variables
Figure 2
Figure 2
Study design and flow of intervention
Figure 3
Figure 3
Consort diagram illustrating flow of participants into study
See this image and copyright information in PMC

References

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