Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2016 May;21(5):808-20.
doi: 10.1177/1359105314539530. Epub 2014 Jul 4.

The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study

Shawn M Bediako  1 , Sophie Lanzkron  2 , Marie Diener-West  3 , Gladys Onojobi  4 , Mary C Beach  2 , Carlton Haywood Jr  2
Affiliations

The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study

Shawn M Bediako et al. J Health Psychol. 2016 May.

Abstract

Research about the influence of stigma on health outcomes in sickle cell disease is limited. We administered the recently developed Measure of Sickle Cell Stigma to 262 patients in the United States. The Measure of Sickle Cell Stigma yielded very good internal consistency and four interpretable factors. Significant associations among stigma, pain-related healthcare utilization, and perceived disease severity were observed for three of the four stigma factors (F range = 2.78-5.44). The Measure of Sickle Cell Stigma appears to be a useful tool for measuring disease-specific stigma among adults living with sickle cell disease, and further assessment of its clinical utility is warranted.

Keywords: disease severity; sickle cell; stigma; utilization.

PubMed Disclaimer

Figures

Figure 1
Figure 1
Mean stigma scores by perceived disease severity (N = 262).
Figure 2
Figure 2
Mean stigma scores by acute care service utilization (N = 262).
Figure 3
Figure 3
Mean stigma scores by hospital admission levels (N = 262).
See this image and copyright information in PMC

References

    1. Addis G, Spector R, Shaw E, et al. The physical, social and psychological impact of priapism on adult males with sickle cell disorder. Chronic Illness. 2007;3:145–154. DOI: 10.1177/1742395307081505. - PubMed
    1. Alao AO, Cooley E. Depression and sickle cell disease. Harvard Review of Psychiatry. 2001;9:169–177. DOI: 10.1080/10673220127896. - PubMed
    1. Alvidrez J, Snowden LR, Patel SG. The relationship between stigma and other treatment concerns and subsequent treatment engagement among black mental health clients. Issues in Mental Health Nursing. 2010;31:257–264. DOI: 10.3109/01612840903342266. - PubMed
    1. Asgharian A, Anie KA, Berger M. Women with sickle cell trait: Reproductive decision-making. Journal of Reproductive and Infant Psychology. 2003;21:23–33. DOI: 10.1080/0264683021000060057.
    1. Asnani MR, Fraser R, Lewis NA, et al. Depression and loneliness in Jamaicans with sickle cell disease. BMC Psychiatry. 2010;10:40. DOI: 10.1186/1471-244x-10-40. - PMC - PubMed