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Review
. 2014 Nov-Dec;29(6):660-9.
doi: 10.1016/j.pedn.2014.06.009. Epub 2014 Jun 26.

When a child dies: parents' experiences of palliative care-an integrative literature review

Christina Melin-Johansson  1 , Inge Axelsson  2 , Marie Jonsson Grundberg  3 , Frida Hallqvist  3
Affiliations
Review

When a child dies: parents' experiences of palliative care-an integrative literature review

Christina Melin-Johansson et al. J Pediatr Nurs. 2014 Nov-Dec.

Abstract

The aim of this integrative review was to increase knowledge about parents' experiences of palliative care when their child is dying or has died due to illness using Whittemore and Knafl (2005) analysis process. Computerized databases were used to search the literature. Nine papers met the inclusion criteria. The analysis resulted in five categories: genuine communication, sincere relationships, respect as an expert, and alleviation of suffering and need of support, including 15 subcategories. Health professionals need education to provide high-quality pediatric palliative care. They especially need training concerning existential issues, and further studies need to be performed.

Keywords: Communication; Family; Literature review; Palliative care; Pediatrics; Support.

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