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. 2014;53(7):670-8.
doi: 10.1080/00981389.2014.925998.

Caregivers' experience in patients with chronic diseases

Eirini Grapsa  1 , Kostantinos Pantelias, Edmond Ntenta, Chrysoula Pipili, Eva Kiousi, Maria Samartzi, Stylianos Karagiannis, Panagiotis Heras
Affiliations

Caregivers' experience in patients with chronic diseases

Eirini Grapsa et al. Soc Work Health Care. 2014.

Abstract

The aim of this study was to describe the characteristics of caregivers of patients with chronic diseases, assess their perceived burden, and investigate factors influencing this burden. Seventy-three patient-attendants (43 men and 30 women) participated in the pilot-research conducted by two clinics. Of them, 68% attended patients with a malignant disease and 32% attended patients in the end stage of renal disease. Based on questionnaire data, the influence of the social support was studied, in particular that of family members or through state programmers. Family members are the primary caregivers (spouses 51%, children 29%, and others 20%). Psychological support is the main important help that they need and there are a small number of caregivers who have access to a network of medical and social support. It is found that the family still remains the main supporting mechanism for attendants and patients in our population.

Keywords: caregivers’ needs; chronic diseases; support mechanism.

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