Assessing Genetic Risks: Implications for Health and Social Policy
- PMID: 25144102
- Bookshelf ID: NBK236042
- DOI: 10.17226/2057
Assessing Genetic Risks: Implications for Health and Social Policy
Excerpt
Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening.
Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decisionmaking, public health objectives, cost, and more. Among the important issues covered:
Quality control in genetic testing.
Appropriate roles for public agencies, private health practitioners, and laboratories.
Value-neutral education and counseling for persons considering testing.
Use of test results in insurance, employment, and other settings.
Copyright 1994 by the National Academy of Sciences. All rights reserved.
Sections
- COMMITTEE ON ASSESSING GENETIC RISKS
- Preface
- Acknowledgments
- Notes
- Executive Summary
- 1. Setting the Stage
- 2. Genetic Testing and Assessment
- 3. Laboratory Issues in Human Genetics
- 4. Issues in Genetic Counseling
- 5. Public Education in Genetics
- 6. Personnel Issues in Human Genetics
- 7. Financing of Genetic Testing and Screening Services
- 8. Social, Legal, and Ethical Implications of Genetic Testing
- 9. Research and Policy Agenda
- APPENDIX A. Workshop Participants
- APPENDIX B. Committee Biographies
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