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. 2014 Nov;104(11):2037-43.
doi: 10.2105/AJPH.2014.302006. Epub 2014 Sep 11.

The Convention on the Rights of Persons with Disabilities: a foundation for ethical disability and health research in developing countries

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The Convention on the Rights of Persons with Disabilities: a foundation for ethical disability and health research in developing countries

Jo Durham et al. Am J Public Health. 2014 Nov.

Abstract

The United Nations Convention on the Rights of Persons with Disabilities (CRPD) has foregrounded disability as a human rights and equity issue, elevating it to a priority global research area. Academics from Western universities are likely to play an increasing role in disability health research in developing countries. In such contexts, there is a need to bridge the gap between procedural ethics and the realities of disability research in cross-cultural contexts. We provide guidance on engaging in ethical disability health research that intersects with and upholds the CRPD. We highlight challenges and tensions in doing so, underscoring the need to be sensitive to the sociocultural and political context of disability that determines how ethical research should proceed. We conclude with 5 recommendations.

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