Parkinson's disease: Prevalence, diagnosis and impact

Abstract

This article provides information on Parkinson's disease, using the 2010/2011 Canadian Community Health Survey, the 2011/2012 Survey of Neurological Conditions in Institutions in Canada, and the 2011 Survey of Living with Neurological Conditions in Canada. An estimated 0.2% of Canadian adults in private households (55,000), and 4.9% of those in residential institutions (12,500), had Parkinson's disease. Younger age at symptom onset was associated with a longer period to disease diagnosis. As a result of the condition, 58% reported that social interactions were negatively affected, 61% reported out-of-pocket expenses, and 56% reported receiving assistance with activities such as housework, transportation or personal care. Among those receiving assistance, 84% relied at least in part on family, friends or neighbours. The primary informal caregiver tended to be a spouse (64%), female (62%), live in the same household (72%), and provide assistance on a daily basis (76%).

Keywords: Caregivers; limitation of activity; neurological disease; self-care.