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. 2015 Feb 10;13(2):e1002067.
doi: 10.1371/journal.pbio.1002067. eCollection 2015 Feb.

An innovative lab-based training program to help patient groups understand their disease and the research process

Marion Mathieu  1 , Constance Hammond  2 , David G Karlin  1
Affiliations

An innovative lab-based training program to help patient groups understand their disease and the research process

Marion Mathieu et al. PLoS Biol. .

Abstract

Genuine partnership between patient groups and medical experts is important but challenging. Our training program meets this challenge by organizing hands-on, lab-based training sessions for members of patient groups. These sessions allow "trainees" to better understand their disease and the biomedical research process, and strengthen links between patients and local researchers. Over the past decade, we and our partner institutes have received more than 900 French patients, with the participation of over 60 researchers and clinicians.

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Conflict of interest statement

The authors have declared that no competing interests exist.

Figures

Fig 1
Fig 1. Layout of a typical training session for patient groups with a genetic disease.
See also Fig. 2 for how we tailor each training session to a particular disease.
Fig 2
Fig 2. How we tailor practical workshops for a given disease based on the stage of research.
Fig 3
Fig 3. Layout of a typical training session for patient groups with an autoimmune or autoinflammatory disease.
See this image and copyright information in PMC

References

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