What's in it for me? The meaning of involvement in a self-advocacy group for six people with intellectual disabilities

Abstract

Background: This article explores the experiences of six people with intellectual disabilities in the context of a self-advocacy group, identifying the benefits and difficulties of being part of the group.

Materials and methods: Six adults with intellectual disabilities were interviewed about their experiences. Each individual took part in two individual and two group interviews. The transcripts were analysed using thematic analysis.

Results: Analysis revealed four themes, namely, being part of the group, self-esteem, self-determination and empowerment.

Conclusion: Being part of the group is central to the experience of self-esteem, self-development and empowerment. Responses allow the exploration of the interrelationship between individual, group and community. Consideration is given to models of disability and the evidence base in relation to personal and political outcomes of self-advocacy. Links are made with developing a sense of self, self-determination, interpersonal learning and building resilience. Implications for practice are discussed.

Keywords: intellectual disabilities; models of disability; resilience; self-advocacy; self-determination.