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. 2014 Oct 11:1:26.
doi: 10.1186/s40697-014-0026-5. eCollection 2014.

Canadian Organ Replacement Register (CORR): reflecting the past and embracing the future

Louise M Moist  1 , Stanley Fenton  2 , Joseph S Kim  3 , John S Gill  4 , Frank Ivis  5 , Eric de Sa  5 , Juliana Wu  5 , Ahmed A Al-Jaishi  6 , Manish M Sood  7 , Scott Klarenbach  8 , Brenda R Hemmelgarn  9 , Joanne E Kappel  10
Affiliations

Canadian Organ Replacement Register (CORR): reflecting the past and embracing the future

Louise M Moist et al. Can J Kidney Health Dis. .

Abstract
in English, French

Introduction: The Canadian Organ Replacement Register (CORR) is the only Canadian information system on kidney and extra-kidney organ failure and transplantation in Canada. CORR's mandate is to record and analyze the level of activity and outcomes of vital organ transplantation and treatment of end stage kidney disease using dialysis, either hemodialysis or peritoneal dialysis, activities across Canada. The Canadian Organ Replacement Register was officially launched in 1987, and it included transplantation of extra-renal vital organs (liver, heart, lung, pancreas, bowel), in addition to renal transplantation and replacement therapy, with new financial support from the provinces.

Objective: This manuscript describes the process of data acquisition and reporting, focusing on the patients with end stage kidney disease on dialysis, with data reported from the 2014 CORR Annual Data Report and the Center-Specific Reports on Clinical Measures.

Methods: CORR is currently housed in the Canadian Institute for Health Information and collects data from hospital dialysis programs, regional transplant programs, organ procurement organizations and kidney dialysis services offered at independent health facilities. Data on patients is collected by completion of survey forms for each patient at the start of dialysis or receiving a transplant, using the Initial Registration form, and yearly follow up forms, which collects data on the status of the patient as of October 31(st).

Results: The incident rate per million population (RPMP) has remained stable with the exception of the 65+ age group with has experience a modest decrease since 2001. However, there has been an increasing prevalence of ESKD diagnoses, with the highest rate per million population (RPMP) amongst the age group 65+ years. This is likely attributed to gradual improving patient survival. Between 2003 and 2012, nearly 90% of dialysis patients younger than <18 and 26% of patients 75+ years survived for at least five years.

Conclusion: As the number of people treated for end-stage organ failure grows, so does the importance of understanding their treatment and outcomes. In 2014, CORR continues to evolve and support the important information need to advance ESRD research and clinical practice.

Introduction: Le Registre canadien des insuffisances et des transplantations d’organes (RCITO) est le seul réseau d’information sur l’insuffisance rénale et extrarénale et la transplantation au Canada. Le mandat du RCITO est de rapporter et d’analyser le niveau d’activité et les résultats des transplantations d’organes vitaux, de même que le traitement de l’insuffisance rénale terminale (IRT) par la dialyse, sous forme d’hémodialyse ou de dialyse péritonéale, au Canada. Le registre a officiellement été lancé en 1987, et il comprenait la transplantation d’organes vitaux extrarénaux (foie, cœur, poumon, pancréas, intestin), en plus de la transplantation rénale et de la thérapie de remplacement rénal, grâce à un financement nouveau des provinces.

Objectifs: Le présent manuscrit décrit le processus d’acquisition et de communication des données sur les patients au stade d’insuffisance rénale terminale qui ont une thérapie de remplacement rénal, et des données tirées du rapport annuel de 2014 du RCITO et de rapports concernant les centres au sujet des mesures cliniques.

Méthodes: Le RCITO est actuellement hébergé par l’Institut canadien d’information sur la santé et recueille des données au sujet des programmes de dialyse en milieu hospitalier, des programmes régionaux de transplantation, des services de prélèvement d’organes et des services de dialyse rénale offerts dans des établissements de santé indépendants. Les données sur les patients sont recueillies par le truchement d’un sondage mené auprès de chaque patient au début de la dialyse ou avant une transplantation, grâce au formulaire d’enregistrement et aux formulaires de suivi annuels, qui recueillent des données sur le statut du patient en date du 31 Octobre.

Résultats: Le taux d’incidence par million de population est demeuré stable, à l’exception de la tranche d’âge des 65 ans et plus, qui a subi une faible diminution depuis 2001. Toutefois, il y a eu prévalence accrue des diagnostics d’IRT, avec le taux le plus élevé par million de population chez les 65 ans et plus. Ceci est probablement attribuable à l’amélioration graduelle de la survie des patients. Entre 2003 et 2012, près de 90% des patients en dialyse âgés de moins de 18 ans et 26% des patients de plus de 75 ans ont survécu pendant au moins 5 ans.

Conclusion: L’importance de comprendre les traitements appropriés et les résultats croît à mesure qu’augmente le nombre de personnes traitées pour insuffisance d’organe. En 2014, le RCITO continue d’évoluer et de soutenir les besoins considérables en information afin de faire avancer la recherche et la pratique clinique en IRT.

Keywords: Hemodialysis; Peritoneal dialysis; Renal replacement register CORR.

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Figures

Figure 1
Figure 1
Incident ESKD patients, age-specific rate per million population, Canada, 1993 to 2012.
Figure 2
Figure 2
Incident ESKD patients, rate per million population by Province, Canada, 2012. *Under-reporting of incident ESKD cases from Quebec was estimated to be approximately 560 cases in 2012. This under-reporting is due to administrative issues that have temporarily halted data submission to CORR.
Figure 3
Figure 3
Prevalent ESKD patients, age-specific rate per million population, Canada, 1993 to 2012.
Figure 4
Figure 4
Unadjusted three month and one, three and five-year survival rates*. In Dialysis Patients, by Age Group, Canada 2003 to 2012 (percentage).
See this image and copyright information in PMC

References

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