Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2015 Sep;100(9):826-33.
doi: 10.1136/archdischild-2014-307517. Epub 2015 Mar 19.

What makes for a 'good' or 'bad' paediatric diabetes service from the viewpoint of children, young people, carers and clinicians? A synthesis of qualitative findings

Katherine Curtis-Tyler  1 , Lisa Arai  2 , Terence Stephenson  3 , Helen Roberts  3
Affiliations
Review

What makes for a 'good' or 'bad' paediatric diabetes service from the viewpoint of children, young people, carers and clinicians? A synthesis of qualitative findings

Katherine Curtis-Tyler et al. Arch Dis Child. 2015 Sep.

Abstract

Background: There is mounting evidence that experience of care is a crucial part of the pathway for successful management of long-term conditions.

Design and objectives: To carry out (1) a systematic mapping of qualitative evidence to inform selection of studies for the second stage of the review; and (2) a narrative synthesis addressing the question, What makes for a 'good' or a 'bad' paediatric diabetes service from the viewpoint of children, young people, carers and clinicians?

Results: The initial mapping identified 38 papers. From these, the findings of 20 diabetes-focused papers on the views on care of ≥650 children, parents and clinicians were synthesised. Only five studies included children under 11 years. Children and young people across all age groups valued positive, non-judgemental and relationship-based care that engaged with their social, as well as physical, health. Parents valued provision responsive to the circumstances of family life and coordinated across services. Clinicians wanting to engage with families beyond a child's immediate physical health described finding this hard to achieve in practice.

Limitations: Socioeconomic status and ethnicity were poorly reported in the included studies.

Conclusions: In dealing with diabetes, and engaging with social health in a way valued by children, parents and clinicians, not only structural change, such as more time for consultation, but new skills for reworking relations in the consultation may be required.

Keywords: Adolescent Health; Diabetes; Health services research; Paediatric Practice; Qualitative research.

PubMed Disclaimer

Figures

Figure 1
Figure 1
Flow chart of selection of studies for synthesis.
See this image and copyright information in PMC

References

    1. Bedford Russell AR, Passant M, Kitt H. Engaging children and parents in service design and delivery. Arch Dis Child 2014;99:1158–62 10.1136/archdischild-2013-304869. - DOI - PubMed
    1. Thomas J, Sutcliffe K, Harden A, et al. Children and healthy eating: a systematic review of barriers and facilitators. London: SSRU, 2004.
    1. Morris C, Janssens A, Allard A, et al. Informing the NHS Outcomes Framework: evaluating meaningful health outcomes for children with neurodisability using multiple methods including systematic review, qualitative research, Delphi survey and consensus meeting. Health Serv Deliv Res 2014;2 ISSN: 2050-4349. 10.3310/hsdr02150 - DOI - PubMed
    1. Attree P. Growing up in disadvantage: a systematic review of the qualitative evidence. Child Care Health Dev 2004;30:679–89. 10.1111/j.1365-2214.2004.00480.x - DOI - PubMed
    1. Davies SC. Annual Report of the Chief Medical Officer 2012, Our Children Deserve Better: Prevention Pays. London: DH, 2013.

Publication types