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. 2015;68(1):61-7.
doi: 10.5173/ceju.2015.01.494. Epub 2015 Mar 13.

Quality of life related to urinary continence in adult spina bifida patients

Joceline S Liu  1 , Caroline Dong  1 , Jessica T Casey  1 , Alyssa Greiman  1 , Shubhra Mukherjee  2 , Stephanie J Kielb  1
Affiliations

Quality of life related to urinary continence in adult spina bifida patients

Joceline S Liu et al. Cent European J Urol. 2015.

Abstract

Introduction: To analyze the correlations of bladder management technique, ambulatory status and urologic reconstruction on quality of life (QOL) as affected by urinary symptoms in adult spina bifida (SB) patients.

Material and methods: Sixty-six adult SB patients completed the RAND 36-Item Health Survey (mSF-36) and Incontinence Quality of Life (I-QOL). Demographic information, history of urinary reconstruction, and bladder management techniques were reviewed and analyzed with respect to survey scores.

Results: Mean age of patients was 32.3 (SD ±7.2) years and 44 patients (66.7%) were female. Forty-five patients (68.2%) were mainly ambulatory, 21 (31.8%) use a wheelchair and 10 (15.2%) had urologic reconstruction, while 56 (83.3%) did not. Twelve patients (18.2%) void, 42 (63.6%) perform clean intermittent catheterization (CIC), 4 (6.1%) use an indwelling catheter, 3 (4.5%) have an ileal conduit (IC) and 5 (7.6%) mainly use diapers. Mean mSF-36 General Health score was 56.5 (SD ±22.9) and mean I-QOL Sum score was 50.9 (SD ±21.7), where lower scores reflect lower QOL. mSF-36 and I-QOL scores did not significantly correlate with bladder management technique, ambulatory status or urologic reconstruction. A correlation was noted between I-QOL scales and most mSF-36 scales (all p <0.02).

Conclusions: In our cohort study of adult SB patients, bladder management technique and urologic reconstruction did not correlate with urinary (I-QOL) or general health (mSF-36) domains, although I-QOL and mSF-36 scores correlated closely, suggesting urinary continence is significantly related to general QOL. However, we are unable to identify a single factor that improves either urinary or general QOL.

Keywords: quality of life; spina bifida; urinary continence.

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References

    1. Parekh AD, Trusler LA, Pietsch JB, Byrne DW, DeMarco RT, Pope JC, 4th, et al. Prospective, longitudinal evaluation of health related quality of life in the pediatric spina bifida population undergoing reconstructive urological surgery. J Urol. 2006;176:1878–1882. - PubMed
    1. Parker SE, Mai CT, Canfield MA, Rickard R, Wang Y, Meyer RE, et al. Updated National Birth Prevalence estimates for selected birth defects in the United States, 2004–2006. Birth Defects Res A Clin Mol Teratol. 2010;88:1008–1016. - PubMed
    1. Fletcher JM, Brei TJ. Introduction: Spina bifida–A multidisciplinary perspective. Dev Disab Res Rev. 2010;16:1–5. - PMC - PubMed
    1. Liptak GS, Garver K, Dosa NP. Spina bifida grown up. J Dev Behav Pediatr. 2013;34:206–215. - PubMed
    1. Lloyd JC, Wiener JS, Gargollo PC, Inman BA, Ross SS, Routh JC. Contemporary epidemiological trends in complex congenital genitourinary anomalies. J Urol. 2013;190:1590–1595. - PubMed

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