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Review
. 2015 Sep;10(3):213-24.
doi: 10.1007/s11899-015-0261-6.

The Value of Patient Reported Outcomes and Other Patient-Generated Health Data in Clinical Hematology

Hemant S Murthy  1 , William A Wood
Affiliations
Review

The Value of Patient Reported Outcomes and Other Patient-Generated Health Data in Clinical Hematology

Hemant S Murthy et al. Curr Hematol Malig Rep. 2015 Sep.

Abstract

With cures and long-term survival rates increasing in hematologic malignancies, increased focus has been placed on gaining a better understanding of the patient experience from disease and treatment effects. This has been the basis for the utilization of patient reported outcomes (PRO) and other patient-generated health data (PGHD) in efforts to improve long-term health-related quality of life (HRQOL). This review will summarize the impact PROs have had on the evolving standard of care for patients with hematologic malignant conditions and will conclude with a template for the integration of PRO and PGHD to enhance the patient experience, using stem cell transplantation as an example.

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