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. 2015 Dec;68(12):1463-71.
doi: 10.1016/j.jclinepi.2015.04.002. Epub 2015 May 1.

Strengthening the Reporting of Observational Studies in Epidemiology for respondent-driven sampling studies: "STROBE-RDS" statement

Richard G White  1 , Avi J Hakim  2 , Matthew J Salganik  3 , Michael W Spiller  2 , Lisa G Johnston  4 , Ligia Kerr  5 , Carl Kendall  6 , Amy Drake  2 , David Wilson  7 , Kate Orroth  8 , Matthias Egger  9 , Wolfgang Hladik  2
Affiliations

Strengthening the Reporting of Observational Studies in Epidemiology for respondent-driven sampling studies: "STROBE-RDS" statement

Richard G White et al. J Clin Epidemiol. 2015 Dec.

Abstract

Objectives: Respondent-driven sampling (RDS) is a new data collection methodology used to estimate characteristics of hard-to-reach groups, such as the HIV prevalence in drug users. Many national public health systems and international organizations rely on RDS data. However, RDS reporting quality and available reporting guidelines are inadequate. We carried out a systematic review of RDS studies and present Strengthening the Reporting of Observational Studies in Epidemiology for RDS Studies (STROBE-RDS), a checklist of essential items to present in RDS publications, justified by an explanation and elaboration document.

Study design and setting: We searched the MEDLINE (1970-2013), EMBASE (1974-2013), and Global Health (1910-2013) databases to assess the number and geographical distribution of published RDS studies. STROBE-RDS was developed based on STROBE guidelines, following Guidance for Developers of Health Research Reporting Guidelines.

Results: RDS has been used in over 460 studies from 69 countries, including the USA (151 studies), China (70), and India (32). STROBE-RDS includes modifications to 12 of the 22 items on the STROBE checklist. The two key areas that required modification concerned the selection of participants and statistical analysis of the sample.

Conclusion: STROBE-RDS seeks to enhance the transparency and utility of research using RDS. If widely adopted, STROBE-RDS should improve global infectious diseases public health decision making.

Keywords: Biomedical research/methods; Cross-sectional studies; Epidemiologic research design; Epidemiologic studies; Guidelines as topic; Guidelines as topic/standards; Humans; Observation/methods; Practice guidelines as topic; Publishing/standards; Research design.

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Figures

Fig. 1
Fig. 1
(A) Number of published peer-reviewed studies using respondent-driven sampling 1990–July 2013. * = part year. (B) World map showing number of published peer-reviewed studies using respondent-driven sampling 1990–July 2013, by country.
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References

    1. Anderson R., May R. Oxford University Press; Oxford: 1991. Infectious diseases of humans: dynamics and control.
    1. Rothman K.J., Greeenland S. 2nd ed. Lippincott Williams & Williams; Philadelphia: 1997. Modern epidemiology.
    1. Magnani R., Sabin K., Saidel T., Heckathorn D. Review of sampling hard-to-reach and hidden populations for HIV surveillance. Aids. 2005;19(Suppl 2):S67–S72. - PubMed
    1. Heckathorn D.D. Respondent-driven sampling: a new approach to the study of hidden populations. Social Probl. 1997;44(2):174–199.
    1. Malekinejad M., Johnston L., Kendall C., Kerr L., Rifkin M., Rutherford G. Using respondent-driven sampling methodology for HIV biological and behavioral surveillance in international settings: a systematic review. AIDS Behav. 2008;12:105–130. - PubMed

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