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. 2015 Aug 13:6:225-8.
doi: 10.2147/PROM.S86298. eCollection 2015.

Developing a handheld record for patients with cystic fibrosis

Omendra Narayan  1 , Siobhan Davies  1 , Carly Tibbins  2 , Jh Martyn Rees  3 , Warren Lenney  4 , Francis J Gilchrist  4
Affiliations

Developing a handheld record for patients with cystic fibrosis

Omendra Narayan et al. Patient Relat Outcome Meas. .

Abstract

Patient handheld records (PHHRs) promote self-management and empower the holder to take a more active role in the management of their disease. They have been used successfully in improving preventative care for children and have contributed to improved adherence in a number of chronic illnesses. Despite the potential advantages, there are no standard PHHRs for patients with cystic fibrosis (CF). We report the consultation process that led to the development of a CF PHHR, describe the final document, and analyze the feedback from their use at our center. We have made the CF PHHR freely available online.

Keywords: cystic fibrosis; patient and public involvement; patient handheld records; pediatrics.

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References

    1. Schreurs KM, Colland VT, Kuijer RG, de Ridder DT, van Elderen T. Development, content, and process evaluation of a short self-management intervention in patients with chronic diseases requiring self-care behaviours. Patient Educ Couns. 2003;51(2):133–141. - PubMed
    1. Dickey LL. Promoting preventive care with patient-held minirecords: a review. Patient Educ Couns. 1993;20(1):37–47. - PubMed
    1. McCormick MC, Shapiro S, Starfield BH. The association of patient-held records and completion of immunizations. Clin Pediatr (Phila) 1981;20(4):270–274. - PubMed
    1. Saibil F, Lai E, Hayward A, Yip J, Gilbert C. Self-management for people with inflammatory bowel disease. Can J Gastroenterol. 2008;22(3):281–287. - PMC - PubMed
    1. Rubin RR. Adherence to pharmacologic therapy in patients with type 2 diabetes mellitus. Am J Med. 2005;118(Suppl 5A):27S–34S. - PubMed

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