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. 2015 Aug 7:7:ecurrents.md.87770501e86f36f1c71e0a5882ed9ba1.
doi: 10.1371/currents.md.87770501e86f36f1c71e0a5882ed9ba1.

Imperatives for DUCHENNE MD: a Simplified Guide to Comprehensive Care for Duchenne Muscular Dystrophy

Kathi Kinnett  1 , Sunil Rodger  2 , Elizabeth Vroom  3 , Pat Furlong  4 , Annemieke Aartsma-Rus  2 , Kate Bushby  2
Affiliations

Imperatives for DUCHENNE MD: a Simplified Guide to Comprehensive Care for Duchenne Muscular Dystrophy

Kathi Kinnett et al. PLoS Curr. .

Abstract

Duchenne muscular dystrophy (DMD) is a progressive, life-limiting muscle-wasting disease. Although no curative treatment is yet available, comprehensive multidisciplinary care has increased life expectancy significantly in recent decades. An international consensus care publication in 2010 outlined best-practice care, which includes corticosteroid treatment, respiratory, cardiac, orthopedic and rehabilitative interventions to address disease manifestations. While disease specialists are largely aware of these care standards, local physicians responsible for the day-to-day care of patients and families may be less familiar. To facilitate optimal care, a one-page document has been generated from published care recommendations, summarizing the key elements of comprehensive care for people living with DMD ("Imperatives for Duchenne muscular dystrophy). This document was developed through an international collaboration between Parent Project Muscular Dystrophy (PPMD), United Parent Projects Muscular Dystrophy (UPPMD) and TREAT-NMD.

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Imperatives for DUCHENNE MD: a guide for providers. A one-page summary of the imperative components of comprehensive multidisciplinary care for patients with Duchenne muscular dystrophy.
Imperatives for DUCHENNE MD: a guide for providers. A one-page summary of the imperative components of comprehensive multidisciplinary care for patients with Duchenne muscular dystrophy.
See this image and copyright information in PMC

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