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. 2016 Sep;21(6):762-8.
doi: 10.1080/13548506.2015.1115110. Epub 2015 Nov 20.

The experience of meditation for people with amyotrophic lateral sclerosis and their caregivers - a qualitative analysis

Anna Marconi  1 , Gaia Gragnano  1 , Christian Lunetta  1 , Ramona Gatto  1 , Viviana Fabiani  1 , Aurora Tagliaferri  2 , Gabriella Rossi  1 , Valeria Sansone  1 , Francesco Pagnini  3   2
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The experience of meditation for people with amyotrophic lateral sclerosis and their caregivers - a qualitative analysis

Anna Marconi et al. Psychol Health Med. 2016 Sep.

Erratum in

  • ERRATUM.
    Marconi A, Gragnano G, Lunetta C, Gatto R, Fabiani V, Tagliaferri A, Rossi G, Sansone V, Pagnini F. Marconi A, et al. Psychol Health Med. 2016 Sep;21(6):vii. doi: 10.1080/13548506.2015.1125113. Epub 2015 Dec 4. Psychol Health Med. 2016. PMID: 26637052 No abstract available.

Abstract

There is a lack of studies about psychological interventions for people with amyotrophic lateral sclerosis (ALS) and their caregivers. We investigated the experience of a meditation training program tailored for ALS needs. People with ALS (pALS) and their caregivers that joined a meditation program for ALS were interviewed at the end of the program. Verbatims were analyzed with a qualitative approach. Both pALS and their caregivers reported a positive impact on their psychological well-being, promoted by an increase in acceptance and non-judgmental attitude. Furthermore, coping strategies seem to improve, with a positive effect on resilience skills. The ALS meditation training program seems to be an effective psychological intervention for the promotion of well-being in pALS and their caregivers.

Keywords: Amyotrophic lateral sclerosis; caregivers; meditation; mindfulness; psychological interventions; quality of life.

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