Cystic Fibrosis Transitions of Care: Lessons Learned and Future Directions for Cystic Fibrosis

Abstract

Advances in cystic fibrosis (CF) care transformed the condition from one considered lethal by age 7 into a chronic illness (median lifespan, >40 years). With the growing numbers of adults with CF voicing their preference for care in age appropriate settings, the CF community met the challenge by developing an adult-focused care system modeled on the highly successful pediatric CF centers. Adult CF programs ensure lifelong CF specialty care. Preparation for transfer occurs in a process of "transition." This article reviews progress in transition-related care and provides recommendations for research and clinical practice to improve the transition process.

Keywords: Adolescents; Adult CF care; Cystic fibrosis; Pediatric CF care; Transition; Young adults.