Defining an International Standard Set of Outcome Measures for Patients With Hip or Knee Osteoarthritis: Consensus of the International Consortium for Health Outcomes Measurement Hip and Knee Osteoarthritis Working Group

Ola Rolfson¹, Stephanie Wissig², Lisa van Maasakkers², Caleb Stowell², Ilana Ackerman³, David Ayers⁴, Thomas Barber⁵, Thami Benzakour⁶, Kevin Bozic⁷, Nicolaas Budhiparama⁸, James Caillouette⁹, Philip G Conaghan¹⁰, Leif Dahlberg¹¹, Jennifer Dunn¹², John Grady-Benson¹³, Said A Ibrahim¹⁴, Sally Lewis¹⁵, Henrik Malchau¹⁶, Mojieb Manzary¹⁷, Lyn March¹⁸, Nader Nassif⁹, Rob Nelissen¹⁹, Noel Smith²⁰, Patricia D Franklin⁴

Affiliations

¹ International Consortium for Health Outcomes Measurement, Cambridge, Massachusetts, Harris Orthopaedic Laboratory, Massachusetts General Hospital, and Harvard Medical School, Boston, Massachusetts, and Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden. ola.rolfson@vgregion.se.
² International Consortium for Health Outcomes Measurement, Cambridge, Massachusetts.
³ University of Melbourne, Melbourne, Victoria, Australia.
⁴ University of Massachusetts Medical School, Worchester.
⁵ Kaiser Permanente, Oakland, California.
⁶ Zerktouni Orthopedic Clinic, Casablanca, Morocco.
⁷ Dell Medical School, University of Texas at Austin.
⁸ Nicolaas Institute of Constructive Orthopaedic Research and Education Foundation for Arthroplasty and Sports Medicine, Medistra Hospital, Jakarta, Indonesia.
⁹ Hoag Orthopedic Institute, Newport Beach, California.
¹⁰ University of Leeds and National Institute for Health Research Leeds Musculoskeletal Biomedical Research Unit, Leeds, UK.
¹¹ Lund University, Lund, Sweden.
¹² University of Otago, Dunedin, New Zealand.
¹³ Connecticut Joint Replacement Institute, Hartford.
¹⁴ University of Pennsylvania Perelman School of Medicine, Philadelphia.
¹⁵ Aneurin Bevan Health Board, Newport, Wales, UK.
¹⁶ Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden, and Harris Orthopaedic Laboratory, Massachusetts General Hospital, and Harvard Medical School, Boston.
¹⁷ The Johns Hopkins Aramco Health Care Center, Dhahran, Saudi Arabia.
¹⁸ North Sydney Orthopaedic and Sports Medicine Centre and University of Sydney Institute of Bone and Joint, Royal North Shore Hospital, North Sydney, New South Wales, Australia.
¹⁹ University of Leiden, Leiden, The Netherlands.
²⁰ Arthritis Victoria, Elsternwick, Victoria, Australia.

PMID: 26881821
PMCID: PMC5129496
DOI: 10.1002/acr.22868

Defining an International Standard Set of Outcome Measures for Patients With Hip or Knee Osteoarthritis: Consensus of the International Consortium for Health Outcomes Measurement Hip and Knee Osteoarthritis Working Group

Ola Rolfson et al. Arthritis Care Res (Hoboken). 2016 Nov.

. 2016 Nov;68(11):1631-1639.

doi: 10.1002/acr.22868.

Authors

Affiliations

¹ International Consortium for Health Outcomes Measurement, Cambridge, Massachusetts, Harris Orthopaedic Laboratory, Massachusetts General Hospital, and Harvard Medical School, Boston, Massachusetts, and Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden. ola.rolfson@vgregion.se.
² International Consortium for Health Outcomes Measurement, Cambridge, Massachusetts.
³ University of Melbourne, Melbourne, Victoria, Australia.
⁴ University of Massachusetts Medical School, Worchester.
⁵ Kaiser Permanente, Oakland, California.
⁶ Zerktouni Orthopedic Clinic, Casablanca, Morocco.
⁷ Dell Medical School, University of Texas at Austin.
⁸ Nicolaas Institute of Constructive Orthopaedic Research and Education Foundation for Arthroplasty and Sports Medicine, Medistra Hospital, Jakarta, Indonesia.
⁹ Hoag Orthopedic Institute, Newport Beach, California.
¹⁰ University of Leeds and National Institute for Health Research Leeds Musculoskeletal Biomedical Research Unit, Leeds, UK.
¹¹ Lund University, Lund, Sweden.
¹² University of Otago, Dunedin, New Zealand.
¹³ Connecticut Joint Replacement Institute, Hartford.
¹⁴ University of Pennsylvania Perelman School of Medicine, Philadelphia.
¹⁵ Aneurin Bevan Health Board, Newport, Wales, UK.
¹⁶ Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden, and Harris Orthopaedic Laboratory, Massachusetts General Hospital, and Harvard Medical School, Boston.
¹⁷ The Johns Hopkins Aramco Health Care Center, Dhahran, Saudi Arabia.
¹⁸ North Sydney Orthopaedic and Sports Medicine Centre and University of Sydney Institute of Bone and Joint, Royal North Shore Hospital, North Sydney, New South Wales, Australia.
¹⁹ University of Leiden, Leiden, The Netherlands.
²⁰ Arthritis Victoria, Elsternwick, Victoria, Australia.

PMID: 26881821
PMCID: PMC5129496
DOI: 10.1002/acr.22868

Abstract

Objective: To define a minimum Standard Set of outcome measures and case-mix factors for monitoring, comparing, and improving health care for patients with clinically diagnosed hip or knee osteoarthritis (OA), with a focus on defining the outcomes that matter most to patients.

Methods: An international working group of patients, arthroplasty register experts, orthopedic surgeons, primary care physicians, rheumatologists, and physiotherapists representing 10 countries was assembled to review existing literature and practices for assessing outcomes of pharmacologic and nonpharmacologic OA therapies, including surgery. A series of 8 teleconferences, incorporating a modified Delphi process, were held to reach consensus.

Results: The working group reached consensus on a concise set of outcome measures to evaluate patients' joint pain, physical functioning, health-related quality of life, work status, mortality, reoperations, readmissions, and overall satisfaction with treatment result. To support analysis of these outcome measures, pertinent baseline characteristics and risk factor metrics were defined. Annual outcome measurement is recommended for all patients.

Conclusion: We have defined a Standard Set of outcome measures for monitoring the care of people with clinically diagnosed hip or knee OA that is appropriate for use across all treatment and care settings. We believe this Standard Set provides meaningful, comparable, and easy to interpret measures ready to implement in clinics and/or registries globally. We view this set as an initial step that, when combined with cost data, will facilitate value-based health care improvements in the treatment of hip and knee OA.

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Comment in

Physical Activity as an Outcome Measure for Patients With Hip or Knee Osteoarthritis: Comment on the Article by Rolfson et al.
Gademan MGJ, Vliet Vlieland TPM. Gademan MGJ, et al. Arthritis Care Res (Hoboken). 2018 Jun;70(6):954-955. doi: 10.1002/acr.23232. Epub 2018 Apr 18. Arthritis Care Res (Hoboken). 2018. PMID: 28235251 No abstract available.
Reply.
Rolfson O, Grady-Benson J, Dahlberg LE, Franklin PD, Lewis S, Ackerman IN. Rolfson O, et al. Arthritis Care Res (Hoboken). 2018 Jun;70(6):955. doi: 10.1002/acr.23231. Epub 2018 Apr 18. Arthritis Care Res (Hoboken). 2018. PMID: 28235254 No abstract available.

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Defining an International Standard Set of Outcome Measures for Patients With Hip or Knee Osteoarthritis: Consensus of the International Consortium for Health Outcomes Measurement Hip and Knee Osteoarthritis Working Group

Affiliations

Defining an International Standard Set of Outcome Measures for Patients With Hip or Knee Osteoarthritis: Consensus of the International Consortium for Health Outcomes Measurement Hip and Knee Osteoarthritis Working Group

Authors

Affiliations

Abstract

Figures

Comment in

References

MeSH terms

Grants and funding

LinkOut - more resources

Full Text Sources

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